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DiscussionLuteal phase intense cramping pain
Women's Health | Last Active: Oct 24 9:36pm | Replies (19)Comment receiving replies
Replies to "So much of what you have experienced resonates! Unfortunately I have a very similar experience to..."
Hello all,
I’m grateful for this thread as it helps to not feel alone with these symptoms. I’m so sorry for everyone who is experiencing ongoing pain with no answers.
A small update from me, which might help someone… I was referred to a vascular surgeon and investigated for pelvic congestion syndrome, which simply put is varicose veins in the abdomen. It was found to have large, ballooned veins which have now been treated. I was told this is common (especially in women who have experienced pregnancy) and a significant contributor to pelvic pain. I encourage everyone to investigate this path.
Unfortunately my pelvic congestion syndrome isn’t the main contributing cause to my pain, but it’s still hopefully to eliminate an issue and continue the search.
I know this post and your reply is a couple of years old, but I had to respond when I read your story and the others. In fact, I burst into tears.
I have been experiencing almost identical symptoms for nearly 7 years now. Every month directly after ovulation, I experience these uterine contractions (that’s what I call them, as they’re worse than just “cramps” and I can feel a bearing down. They are triggered predominantly by lying down and similarly to you, they wake me up hourly, almost like clockwork, at night for approx 7 nights. They’re also triggered by sometimes standing up after having sat down for an extended period, and orgasms.
Doctors dismissed me over and over and finally I pushed for a laparoscopy, they found “minor endo” and ablated it, and absolutely nothing changed. I am told the only course of action would be hormonal birth control (which I stopped taking a couple of years ago for various reasons and do not wish to repeat the experience)- obviously that is not treating the cause, only covering up the symptoms.
Whatever this is, it has devastated my life.
I cannot express how shocked I am to find this thread after years of googling. Would love an update if you have one and are up to sharing. Otherwise, I wish you and everyone on this thread well.
We need more research, more support, and more doctors listening.
Connect

I want to trail on what you said and mention that I too have been experiencing a very similar pain. I have not gone to any doctors about it. But the symptoms you described match my experience almost exactly.
I’m also grateful to have found this post and to know I’m not alone.