← Return to Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

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@ricki8

That is so kind of you, thanks.
I am in Canada and under a Clinical Trial for NETs with specialists in this field. I called around the world and the original time to get started was about the same. If I left Canada, they would not support me. I only became extra worried when it changed from slow-growing to fast-growing. The intense pain luckily got me in the E.R. where the change was discovered. I seem to be normalized right now with more energy than the last several years. It's so hard to know if I should push my oncologist and the surgical team to incorporate any surgery before they give me the blood work and another CT scan in mid Oct. I was hoping that someone else has a story that I can relate to. I did drop 20 unnecessary lbs., but seem to be holding.

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Replies to "That is so kind of you, thanks. I am in Canada and under a Clinical Trial..."

Hello @ricki8

I'm glad to hear that everything seems to be normalized now and that your weight is holding. It is good that you are having more testing in mid-October. This should help your medical team see how your current treatment is working.

As I read through some of your previous posts, I see that you are getting injections of Lanreotide. This has been quite helpful for many members on Connect in controlling the growth of NETs.

Have you been able to tolerate these injections without too many side effects?