DCIS: Making lifesytle changes but feel I should do more.
Diagnosed with DCIS late last year. Had lumpectomy followed by 4 weeks of radiation. Hospital here in Ireland discourages genetic testing and I'm not sure what to do? Biopsy ER+. Follow up treatment 6 monthly checks. I'm making lifesytle changes but feel I should be doing more.
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2 weeks is definitely too long for biopsy . Mine took 8 days and the surgeon I went to see was really upset it even took that long . I’ve had friends whose results came same day or by next day . Just depends on where you are getting it done I guess . I’ve heard typical is 3-5 days but again it depends on who you are going with .
it feels like months! and not yet. I havent heard from the office nor has the report came across my portal. I really need to call....but while waiting is awful and its letting my mind get to me...in a weird way not knowing yet helps too...if that makes any sense whatsoever.. if u dont mind me asking what were ur symptoms?
I had a strange feeling in my nipple for about a year, then a lump on my chest wall up high that grew fairly quickly. It felt like a bruise but grew to a golf ball size in about 2 months. Turned out to be pretty aggressive ductal carcinoma. I am now almost 20 years out from my original diagnosis.
I understand not wanting to know, but information is power and time is of the essence. I hope you can find out something soon.
thank you, I did end up leaving my surgeon a message. To check up on results and ask about a rash that has developed after my lumpectomy. that too also has be worried...
Good for you, I am crossing my fingers and my toes. I am waiting with you 🤞🙏🤞
Thank you!
Im glad i found this website....nothing makes you feel more alone when you have no one who understands.
Hello again. Well spoke with breast surgeon yesterday, she wants me to get a whole body Bone scan as well as Chest, abdomen& pelvic scan to make sure no cancer cells have traveled to other organs...once results come back , the medical team will decide what course of action..but she did mention surgery to remove cells in breast & lamps in armpit..she also mentioned radiation & +/- chemo...but need to know for sure if cancer is just localized only in breast & armpit...bone scans will determine course of action.
Oh yeah, she ordered genetic testing as well.
Hello,
I’m so glad you were at least able to get some answers! The being in limbo part of all of this is soooo hard. Your mind goes crazy with thoughts of the worst. I am waiting on the results of my Sentinel Node Biopsy and also genetic testing and am scheduled to see the Oncologist’s next week.
I am praying your scan results come back quickly and no cancer has spread!
So will you have a lumpectomy and take out the lymph nodes at the same time?
I may have missed this, but Is your cancer diagnosis Invasive Ductal Carcinoma (IDC)?
Good luck with everything and keep us updated!
We are here for you!
I also was diagnosed with DCIS. I am 65. Unfortunately I am going for my third lumpectomy as I did not get a 0 margin. The surgeon recommended radiation therapy also. Not sure what I will do if I get a 0 margin this time.
I am so sorry to hear your situation. Was the DCIS big? Or do you have more than one? I had two dimensions short margin, one is 1mm, the other is < 1. I decided not taking radiation, and denied the second surgery suggestion, only have MRI after 6 months. My DCIS was 8mm. As we all know each case is very personal, wish you the best.