Connect
Prednisone and bone loss. I was diagnosed with PMR
I was diagnosed with PMR in April ‘23, started on 15 mg prednisone, within 1 day pain was gone. I’m down to 10 mg now. My Rheumatologist wants me to have a Reclast infusion as I have Osteopenia. Has anyone had this infusion? I’m afraid to do it because of the kidney implications.
Like
Helpful
HugInterested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.
Connect
I will update my story. Thanks so much to all who responded previously.
In summary, diagnosed with PMR in July 2022, put on prednisone 20 mg daily. Great results for a short time but my fall had excruciating pain in my right hip. In February I had a total hip replacement with excellent results. Got my prednisone dose down to 5 mg.
A couple of months after my right hip replacement I developed severe pain in my left hip and investigation revealed destruction…..so in Aug I had that hip replaced. Had some complications but home now and doing great. NO pain anywhere. My orthopaedic surgeon says PMR over diagnosed…..hmmmm. Anyway fingers crossed that I will continue to feel this good. The past 1 1/2 years have been very challenging and I feel so bad for all of you on this journey. Best of,luck.
-
Like -
Helpful -
Hug
2 ReactionsI wonder about misdiagnosis too, but I can’t explain the terrible pain that was so debilitating for so long. My joints have some arthritis, but not enough to cause such pain. Methylprednisolone worked for me in two days. The pain is under control, but try spine issues are much worse. MRI next week.