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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)Comment receiving replies
I was diagnosed with SFN recently. I have read a lot of post but mine is different. I feel like I am having a heart attack everyday. I had to go to Mayo Clinic in Florida to get answers. I have shortness of breath, pressure in the center of my chest with pain in the same place, get sharp stabbing pains on both sides mostly on the left side around my heart, tingling in hands, groin, and face. I also hurt in between my shoulder blades, bowel and bladder issues, blood pressure drops when I stand up and stays low. I have been dealing with this for over a year. I am unable to work because of it. I also can not sleep, I have PLMD. My feet stay sore and swell. Eyes are effected, my hearing also. There is more but as you can see I have not quality of life.
Replies to "I was diagnosed with SFN recently. I have read a lot of post but mine is..."
@clayhere - I have appointments with the neurologist and the pain specialist on the 7th. I hope they have time to answer my questions.
Jim
Hi Jim, I take 2x10,000 mcg caps of Biotin every day at noon. I have to take it at noon because it would negatively impact the R-ALA I take in the morning and evening with my other PN supplements.
John
Wow! That's a lot. But I read that there's no risk of overdose by taking too much. I guess you're proof of that.
Jim
@jimhd and @johnbishop
Biotin is a B-vitamin. B-vitamins are water soluble, therefore you don't have the same risk of overdosing. Here is some information from WebMD regarding Biotin that you might find interesting, https://www.webmd.com/vitamins-supplements/ingredientmono-313-biotin.aspx?activeingredientid=313&activeingredientname=biotin
Based on this information, I may take some as well 🙂
Teresa
The only one you really have to be careful of is B6...not your typical B vitamin as far as water soluble. And if you are one that has high levels of it already, you have to be careful of any supplement you take because some of them have a lot of B6 in them.
http://www.easy-immune-health.com/vitamin-b6-toxicity.html
John
@johnbishop Thanks for that information, John. I was not aware of the problems that can occur with B6 - this was all new to me.
Teresa
I learned about the B6 toxicity from members of the closed Facebook group...some of whom were affected by it and made pretty sick until it was identified as the cause of some of their health issues.
I've been taking 1000 mg of B6 for more than 35 years when it was discovered that my body did not handle B6 properly. Under any kind of stress, I pee out all B6 leaving not enough for my body's needs. So I take the large doses in order to have the very small amount needed for proper functioning. Whenever my B6 level has been tested, it shows up as normal. I have an appointment next February with a neurologist in Dr. Oaklander's network, and will be interested to see what he has to say about my B6.
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@johnbishop
Thank you, John, for pointing out the articles, which I read. It gives me one more thing to discuss with the neurologist on the 7th. My sister has MS, and was just prescribed Biotin (vitamin B7) 300mg daily. It's also been used to treat neuropathy.
Jim