So, I will start with, a not comforting statement, of I know how you feel. I was in and out of the ER too many times to count and the cardiologist told me twice that “it wasn’t my heart” (guess he missed it on the radiology report) but I have the zipper (open heart surgery scar) to prove it. Anyway, I would think that once Mayo gets the correct diagnosis, either there or Johns Hopkins would be your best bet. I should’ve gone to Hopkins. That’s a different story. I’ve been a cardiac RN for 20+ years and found and basically diagnosed myself which is how I ended up at the surgeon. However, the barium swallow is ‘gold standard’ for diagnosis as it will really show the ARSA obstruction (as mine did) - fyi… it sucks if you’ve never had one before. Words of advice: research your surgeon. And I cannot stress this enough: STAY OFF GOOGLE. It is not your friend. I have reputable peer-reviewed articles and sites regarding this subject if you’d like them. Let me know if you have any questions. Keep your head up it’s a marathon not a sprint.