Massive spleen and dangerous low platelet count

Posted by derikburger @derikburger, Jan 23, 2022

Myelofibrosis.
Jakafi Hydrea Enrebic not the answer.
Then what is.
I am looking for years allready.
not using any medicine at this stage

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@bjd0501

It is scheduled at the hospital for 7:30 a.m.

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I've had several of Bone Marrow Biopsys. If you have the choice and your insurance will pay for it, do it in the Hospital where they can give you a sedative. You won't have any difficulty or pain at all if you get a sedative. If you have to do it in the Doctors office, it is a bit discomforting. Either way, it's over pretty quickly.

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@bjd0501

It is scheduled at the hospital for 7:30 a.m.

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Good morning @bjd0501 Just wanted to check to see how the biopsy went yesterday. It’s too soon for results but how do you feel today?

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Hello, I have watched my platelets steadily decline over the past year. They are presently 80 which doesn't sound too bad after reading the comments. I take Stelara for Crohn's and Prolia for osteoporosis. Mild splenomegaly. Multiple bruises and fatigue. Recently added vit K and bruising almost gone. Any thoughts?

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@catherine1290

Hello, I have watched my platelets steadily decline over the past year. They are presently 80 which doesn't sound too bad after reading the comments. I take Stelara for Crohn's and Prolia for osteoporosis. Mild splenomegaly. Multiple bruises and fatigue. Recently added vit K and bruising almost gone. Any thoughts?

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Hi @catherine1290, what issues have been ruled out by your doctor? What are you investigating?

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She sent me to a Hemotologist who told me I am fine.

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