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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Replies to "I am not feeling well on Camzyos and am really curious about your experience!"
I am sorry to hear you are feeling unwell, @whidbey.
@nbs has good advice for you, and I would also suggest you let your cardiologist know what is going on and that you feel crummy.
Hopefully other Camzyos members can chime in with their experience and share and compare. I have learned so much from them and can only imagine how you must be feeling...a month in and not doing so great. You just began taking it recently, like last month, correct?
I am in month 4 of trying Camzyos. It seems to have a negative effect on exertion symptoms - the recovery is longer and symptoms come on abruptly. I have asked my cardiologist if I can stop taking it as I feel no benefit. Now waiting to hear from the prescribing cardiologist to stop and go back to Rythmodan. On the bright side during that same conversation Dr Ong is going to co-ordinate my surgery for septal myectomy and mitral valve repair. Fingers crossed it happens before Christmas 🤞🤞
Definitely let your doctor's office know how you are feeling. How are you not feeling well? There might be others who have had the same reaction. My only side effect had been feeling very tired but once my dose was lowered that effect disappeared.