Anyone with CKD can give me answers or advise?

I wanted to mention @sallylynn that when I had sudden onset of similar symptoms, I tested positive for Lyme disease. If you have that tested make sure to insist on a Western Blot, not an Elisa. Elisa's have more false negatives.

I wanted to mention @sallylynn that when I had sudden onset of similar symptoms, I tested positive for Lyme disease. If you have that tested make sure to insist on a Western Blot, not an Elisa. Elisa's have more false negatives.

Hi Windyshores. Yes, I think this is the test for Lyme's?I will copy/ paste what it said for you too see. I do not know if this is the Western Blot or Elisa.Thank you for your reassurance. I probably seem silly with all this, but gosh, I am dumbfounded with the "why's", and I will admit, I am worried.

BORRELIA BURGDORFERI AB, TOTAL WITH REFLEX TO IMMUNOBLOT
Collected on August 24, 2023 10:42 AM
Lab tests - Blood
Results
Borrelia Burgdorferi AB, Total
View trends
Normal value: Negative
Value
Negative
Your value is Negative Normal value Negative
Absence of detectable Borrelia burgdorferi antibodies. A negative result does not exclude the possibility of Borrelia burgdorferi infection. If early Lyme disease is suspected, a second sample should be collected and tested two to four weeks later. There currently is no test of cure for Lyme disease, and this test should not be ordered for that purpose.

Does anyone know if quercetin for relief of itching caused by histamine intolerance is ok to take with a 55 GFR. I am taking 500mg pill daily which I think is helpful particularly at night. I would like to increase to twice daily to 1g which would be recommended dosage. Concern for affect on kidneys which are stable after being damaged by taking some aleve almost 20 years ago.

Hello mrainne. Thank you for responding. All this started around July 23 out of no where. I was just sitting at my computer and all of a sudden my body was getting prickling, tingling pins & needles with some itching. I thought maybe I was having a reaction to the cranberry tablet I took for my UTI. As the day went on, it would come and go. There was a day or 2 there was nothing but then it came back. Because of the UTI, my kidney flanks were hurting on the 27th July early evening, and I woke up with kidney flank pain in the middle of the night, still having the neuropathic sensations. I was concerned they were both correlated. I went to ER on July 28. They ran labs and said all looked good. The ER Doctor had no idea why I was having the skin sensations and Rx'd benedryl. Time went on, my flank pain subsided but the neuropathy did not. It was like a come and go thing, but in the last 10 days it has been progressing. On Aug.22 my ankles started hurting and pain running on my bones in the front of my calves. I couldn't take it anymore and had my Son take me to the ER on Aug.24. They ran all kinds of tests, Blood & urine, and they came in my room and said all my labs looked good. The Dr. claimed my bone pain is probably from my nerves going haywire. They said to follow up with my Doctor, possibly discuss a Neurologist .They prescribed gabapentin 100 mg. So, Thurs. night I took my Gabapentin, and actually slept well! All day yesterday I felt good, actually rejoicing I wasn't suffering. Then, at around 9:30 P.M. last night, it came back. I took my Gabapentin and prayed it would go away. It didn't. Up all night with the ankles hurting, my calves, the stinging all over my body. What else I experienced was sharp pain in my skull on the left side. It lasted about 15 seconds. So, no sleep. I am starting to get depressed and weeping at times. I sit here and ask, how did this happen so fast? Out of no where? I do recall about 5 days ago,on my left hand, the flesh under the thumb had such a jolt it took my breathe away. Like you, electric bolts going through my hand. That lasted about 15-20 seconds. I also deal with Esophagitis & GERD. These are the tests they did at the Hospital: FOLATE,Borrelia Burgdorferi AB, Total,Urinalysis with Microscopy and Culture if >5 WBC/HPF,Vitamin B12(In the normal range but very low),ECG- 12 LEAD WITHOUT RHYTHM,CBC WITH DIFFERENTIAL,COMPREHENSIVE METABOLIC PANEL,TROPONIN, TSH REFLEX FREE T4,ESR and C REACTIVE PROTEIN.
The Doctor came in and said all looks good. I am grateful for that, truly I am, but still I sit here with neuropathy. I recently a couple months back had an Xray of my lungs & they notated my Spine. This is what they wrote: Mild osteoarthritis of bilateral AC joints. Multilevel degenerative disk disease of the thoracic spine with questionable partial fusion of a low thoracic vertebral level.
So I ask myself, is my spine so bad that it's cutting off nerves? Do I have a tumor somewhere that is pressing on major nerve endings? And then again, my mind goes to June 3 when I had the iodine contrast if I am getting delayed adverse reactions. ~

@cniebler38 Good question! I looked up quercetin on WebMD and found this information. It is not recommended for use in kidney patients [see under precaution tab, but entire article is worth reading]: https://www.webmd.com/vitamins/ai/ingredientmono-294/quercetin

Histamine intolerance can be an ordeal to work with. Have you figured out what is causing the itching? Environmental, or another medication, perhaps?
Ginger

@sallylynn It normally takes some time for a medication to get to a therapeutic blood level, sometimes several days. I hope you are feeling better today.

I was not able to take Gabapentin at the dose that would work for me, since I have end stage kidney disease.

There has been a lot going on in your life recently. Taking time to take a deep breath, and recentering yourself, not focusing on the discomfort you might be feeling at that moment, may go a long ways in settling your mind and by trickle-down effect, your body. Do you think that is worth a try?
Ginger

Good morning Ginger, it is so nice to hear from you. I hope you day is going well.
Yes Ginger, so much has been going on.:( . I am trying to distract myself from the pain.~Last night I slept maybe 4 hours. In my sleep I was awoken with pains on the bottom of my feet accompanied by of course the tingling, pins & needles throughout my body. I am losing much sleep. I am groggy today. I am worried why my ankles ache & my calves ache. Is that even a symptom of neuropathy? I review my labs & doctors notes. The exact date this started was July 26 so now it's a month and it's intensifying. I can't help but wonder if it's more than neuropathy and it's something much worse. The chain of events was first a yeast infection, then a UTI. The only thing out of the ordinary was I took a cranberry supplement on the 26th, and was still using miconazole.About 2 hours after the cranberry, it all started, I was on the internet relaxing & my skin started the pins & needles, prickly and itchy. I am trying so hard to deal with this, I truly am. ~ I have an appt, with my doctor Sept.5. I hope she will agree to get me lined up with a Neurologist, I think they can help pinpoint the cause, I hope. If you could respond if bones aching is a symptom that would be appreciated.