DCIS: Making lifesytle changes but feel I should do more.

Posted by pfitzp @pfitzp, Jun 3, 2023

Diagnosed with DCIS late last year. Had lumpectomy followed by 4 weeks of radiation. Hospital here in Ireland discourages genetic testing and I'm not sure what to do? Biopsy ER+. Follow up treatment 6 monthly checks. I'm making lifesytle changes but feel I should be doing more.

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@dmosssadler

Hello...I had an ultrasound for left armpit & a Biopsy & that's how they found out cancerous cells in Lymps first..& then they gave me a Breast MRI where they found 1 3cm in Left brest & 2 1 cm in Right Brest..after biopsies of both breast, findings were both masses in Right breast were Benign but the Left was cancer cells...
I found all this out within the last 2 weeks..so I have an appointment thus Monday coming to speak with a Breast Cancer physician..I guess to discuss treatment options...

Can u tell me what involves a lympectomy? & what was ur experience?

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My lumpectomy was outpatient as well. The mass I had was the size of a walnut and my surgeon took out about the size of a lemon. The surgery and recovery was not too bad but the waiting for the biopsy results was extremely hard.
Are they planning to remove the cancer cells in your left breast? Or do you know yet?
Since you know it has spread to your Lymph nodes, I wonder what treatment they will recommend?
Good luck and positive thoughts coming you way! Keep us posted.

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I have my appointment to see the surgeon on tomorrow..I will keep u posted as to what treatment she suggests..I will keep you in my prayers as well.

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@mcyr0

I’m new to this forum, so my apologies if I missed the answer to my question, but in reference to your diagnosis do you mind sharing what signs/symptoms you had? I had a mammo and ultrasound earlier this week and a core biopsy yesterday.

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I had a slightly painful zing around my nipple for about a year, then a lump up high on the chest wall. What symptoms prompted you to seek help?

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@auntieoakley

I had a slightly painful zing around my nipple for about a year, then a lump up high on the chest wall. What symptoms prompted you to seek help?

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Back in May, I found a large lump in my right breast that was hard and had jagged edges but did not hurt. My doc called in a diagnostic mammogram and ultrasound guided core biopsy. The initial pathology results came back as pre cancer, Atypical Ductal Hyperplasia.
On August 1st I had Lumpectomy surgery and the whole mass was biopsied and came back as invasive metaplastic carcinoma and also DCIS. I just had a Sentinel Node Biopsy (SNB) today and hope to get those results back in a week. I also did genetic testing and am waiting on those results. Depending on what the results of the testing and results of the SNB, will help determine treatment.
Hopefully you get your biopsy results soon. Let us know what you find out.
I am sending positive vibes your way!

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@mchler73

Back in May, I found a large lump in my right breast that was hard and had jagged edges but did not hurt. My doc called in a diagnostic mammogram and ultrasound guided core biopsy. The initial pathology results came back as pre cancer, Atypical Ductal Hyperplasia.
On August 1st I had Lumpectomy surgery and the whole mass was biopsied and came back as invasive metaplastic carcinoma and also DCIS. I just had a Sentinel Node Biopsy (SNB) today and hope to get those results back in a week. I also did genetic testing and am waiting on those results. Depending on what the results of the testing and results of the SNB, will help determine treatment.
Hopefully you get your biopsy results soon. Let us know what you find out.
I am sending positive vibes your way!

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I am really glad you kept getting that checked. I am a long way out from biopsy, but I am tickled to be here for you.💕. I don’t know too much about metaplastic carcinoma, but I know that you are getting it taken care of because of your persistence.
Will you come back and tell me about your test results and treatment plan?

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i had a lumpectomy last Wednesday. my mass was 7mm irrigated, and angular. my core biopsy said i had alot of inflammation as well as fragmented atypical cells. during my lumpectomy they removed a few milk ducts b.c of bloody discharge, while inside they found a portion of my nipple that had im guessing a pocket or just a area that was bloody discharge. i havent gotten the report back, im scared to death. im 32 with a family history of BC. is the area of bloody discharge a good indicator of BC??

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@auntieoakley

I am really glad you kept getting that checked. I am a long way out from biopsy, but I am tickled to be here for you.💕. I don’t know too much about metaplastic carcinoma, but I know that you are getting it taken care of because of your persistence.
Will you come back and tell me about your test results and treatment plan?

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Thank you! Yes, I will definitely keep you updated.
So glad I found this support group. It is so helpful to hear about and learn from others experiences.

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@tculton

i had a lumpectomy last Wednesday. my mass was 7mm irrigated, and angular. my core biopsy said i had alot of inflammation as well as fragmented atypical cells. during my lumpectomy they removed a few milk ducts b.c of bloody discharge, while inside they found a portion of my nipple that had im guessing a pocket or just a area that was bloody discharge. i havent gotten the report back, im scared to death. im 32 with a family history of BC. is the area of bloody discharge a good indicator of BC??

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I’m so sorry to hear this. And it is very scary but being in the support group will be extremely helpful for you to learn from others experiences and for piece of mind.
I hope your biopsy results are quick. The waiting and unknown are the worst!
Did your doctor suggest Genetic testing?
Please, keep us posted on your results. I am sending positive vibes your way.

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@mchler73

I’m so sorry to hear this. And it is very scary but being in the support group will be extremely helpful for you to learn from others experiences and for piece of mind.
I hope your biopsy results are quick. The waiting and unknown are the worst!
Did your doctor suggest Genetic testing?
Please, keep us posted on your results. I am sending positive vibes your way.

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its going on 2 weeks of waiting, its starting to get to me. and yes! i have a appointment in sept. for genetic testing. thank you! i will!

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@tculton

its going on 2 weeks of waiting, its starting to get to me. and yes! i have a appointment in sept. for genetic testing. thank you! i will!

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Two weeks seems like a long time for biopsy results. I understand that everything takes longer these days but most folks in these discussions are getting them in a week. Do they understand that this probably the longest two weeks of your life? I was in my 30’s when I was diagnosed too, somehow the decisions are different and sadly the cancers behave differently too. I am just going to cross…….everything for you.
Have you called your doctors office and asked if those results are in, just to make sure they did not fall through some digital crack?

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