← Return to First Lanreotide Injection: Any tips about diet and side effects?

Discussion

First Lanreotide Injection: Any tips about diet and side effects?

Neuroendocrine Tumors (NETs) | Last Active: Aug 16 7:34am | Replies (73)
Comment receiving replies
@misti

I was diagnosed march of this year with a mass in mysmall intestine. Had surgery to remove it along with my appendix. I have stage 4 ,grade 1 neuroendocrine cancer. What a shock! i have been getting a lanreotide injectio once a month and feel great. Just met with my Dr. last week and nothing has grown or spread so happy.

Jump to this post

Replies to "I was diagnosed march of this year with a mass in mysmall intestine. Had surgery to..."
Teresa, Volunteer Mentor | @hopeful33250 | Aug 28, 2023

Hello @misti and welcome to the NETs support group on Mayo Clinic Connect. I so understand you when you say, "What a shock!" Most of felt the same way when we were first diagnosed.

By way of introduction, I have had three small NETs in the upper digestive tract. I am now a 20-year survivor of NETs and doing well. My only treatments have been surgeries over a 20-year period, so I have no experience with the monthly injections, however, many of our members of this group have taken the monthly injections with very good results.

If you are comfortable sharing more information, I would be interested in knowing what symptoms you were having that led to your diagnosis. For many of us with NETs, there we no symptoms, the NETs were found during a scan or other test for other reasons. Was that your case as well?

VIEW AND REPLY