Hi Lori, I've been a forum slacker, thanks for reaching back out to check on me.
Saw my GP who drew blood. HGB went up 2 points to 14.5. I believe by my next CBC check at the Hema doc (mid Sept) I may need (and want) to get a phlebotomy and I've now got a standing order for saline infusion to see if that helps the days after.
Do you have any insight on finding the HGB number that is your sweetspot? Everybody's body is different and the range is fairly big, I was thinking after time I'm hoping to be in tune with how I feel at various levels and perhaps my sweet spot is on the lower end, middle or higher norm.
Hard to know now with the BP issue, which by the way looks like the new med is doing its job, will continue to track and I'm scheduled for stress test at the cardiologist in 6 weeks. He wanted the meds to be fully kicked in.
He agrees its hard to know if the BP is hereditary, PV related or something else is going on (hopefully not the case!) although my Dad's BP issue was systolic and mine is diastolic and didn't ask that when I was there, thought of it later.

One thing that did show up was low BUN/Creatinine Ratio (10) I hadn't looked at my results in the portal before he called to tell me all looks good right now. He's very good at picking things up and it's a yellow flag, not red on the report. He should have said something because with my SIBO episode and feeling so fatigued, I don't have much of an appetite and looks like that indicates I need more protein intake. Started back up with a protein shake yesterday & I need to get the Aminos I've taken in the past which is protein that goes right to the muscle. It's given to stomach cancer patients who've had their stomach removed, I get it through my health coach. It will help me to work on building up my muscle mass with all this "resting" 👀 🙄 I've never been this sedentary in my whole life.

Love your feedback, if you can give any insights on PV'ers finding their "sweetspot HGB number ", I'd love that. Certainly understand if you have never seen anything on that or heard via this forum.

I do take a low dose aspirin, never answered that previously.

One more thing, do you have any articles on what I'd learn through a bone marrow biopsy? Being Jak2 neg which is only 5% of us with PV, I was wondering if the biopsy would provide more insight. I can ask my PA at the Onc office in Sept, she's been awesome, educating me on reading blood results. I'm going to keep a close eye to keep track of trends etc.

Thank you again and happy Funday Sunday!