Angiosarcoma of the breast caused by previous breast radiation

Posted by lee08 @lee08, Feb 28, 2023

I have recently been diagnosed with an angiosarcoma in my breast. The doctors say it was probably caused by previous radiation of that breast following a lumpectomy about 6 years ago. They tell me it is extremely rare. Has anyone had any experience with this kind of breast cancer?

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Hi @lee08, in addition to @twinsisty1 and @dawnblair33, I'd like to tag @posi9 @jbeck7406 @imjazzco @sherirp who also have angiosarcoma as a result of or after having had breast cancer.

What is your current treatment plan?

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I am going to have 12 weekly treatments of chemo, in addition to radiation for the last 6 of those weeks (ironic, I know, since radiation caused this) to shrink the tumor, and then a mastectomy. 🙏🏻

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<p>Just had left mastectomy due to secondary angiosarcoma after lumpectomy and radiation treatments 3+ years ago.<br />Looking for current information on follow up treatment.</p>

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@bardona

<p>Just had left mastectomy due to secondary angiosarcoma after lumpectomy and radiation treatments 3+ years ago.<br />Looking for current information on follow up treatment.</p>

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Hi @bardona, welcome. I wonder if either of these existing discussions are relevant to your situation?

- Is anybody dealing with an angiosarcoma?
https://connect.mayoclinic.org/discussion/angiosarcoma/
- Angiosarcoma of the breast caused by previous breast radiation
https://connect.mayoclinic.org/discussion/angiosarcoma-of-the-breast-caused-by-previous-breast-radiation/

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@twinsisty1

I too had 2 lumpectomy with radiation with both.
Two years apart.
2014 and 2016.
About 5 years later had a few discolored spot on my chest. My surgeon suspected this right away. I had a full mastectomy. The doctors had a meeting and decided no treatment. I have scan every 3 months plus blood work up. It’s been a year now and nothing has showed up. Will continue with
Scans and checkups.
Also have a skin doctor
Involved. Hoping for a good outcome for you.

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I am encouraged by your text. I just had a mastectomy this month of my left breast for angiosarcoma. It was caused by the radiation treatment I had after a Lumpectomy for lobular breast cancer 3 and a half years ago. The current plan is observation along with scans and blood tests. I was hoping for this kind of follow-up rather then chemo or more radiation.
Prayers you will remain cancer free.

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@colleenyoung

Hi @bardona, welcome. I wonder if either of these existing discussions are relevant to your situation?

- Is anybody dealing with an angiosarcoma?
https://connect.mayoclinic.org/discussion/angiosarcoma/
- Angiosarcoma of the breast caused by previous breast radiation
https://connect.mayoclinic.org/discussion/angiosarcoma-of-the-breast-caused-by-previous-breast-radiation/

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Yes. Thank you Colleen.

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this is Mulkey 518 - yes I would love to join this group - what do I need to do.

thank you

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I had angiosarcoma in my upper right side chest-- but NOT breast!
Many years ago I had Melanoma in my right arm. No radiation, just extensive surgery.
My right arm has always been somewhat swollen, besides having a bad scar, I've always wondered if the melanoma was connected with the angiosarcoma. Never got a clear answer from any doctor!

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@mulkey518

this is Mulkey 518 - yes I would love to join this group - what do I need to do.

thank you

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Hi @mulkey518, simply by posting to this discussion, you are part of the group. 🙂

What treatment are you or did you have for angiosarcoma? How are you doing?

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lee08
How have you been? Just was looking on page as I haven’t been on in a while.
Haven’t had any more Sarcoma problems show up Scans have.been clear.
Did have some kidney stones removed and a stent for awhile. I’m having my scan and work up every 6 months now with cancer doctor. Have to go to dermatologist also. Had a melanoma on my shoulder which was taken off on a out patient basis. Was a boating person when my daughter was growing up so to much sun. If u get a chance let me know how you are doing.

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