← Return to My Experience on Evenity for Treating Osteoporosis

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@pulane

This is all helpful for me to read. I am 68 with severe osteoporosis. Fosamax did not work for me and now after 1 year of Tymlos, my DEXA score has still gone down. Both of my former doctors have retired and I am assigned to see a PA next month, I really am not happy about that as I feel I need someone who researchers osteoporosis carefully. I have scoliosis too and had back surgery when 17 that has led to severe arthritis in the spine (my ribs were fused to certain vertebrate in a procedure no longer done) so my bones are quite something else! I eat what I think is a good diet , do strength training and balance exercises but that only goes so far. Live in Madison, WI and am going to see if my GP can refer me to someone at Mayo as I am (hoping) there could be good help there. IN reading all of the above, I am thinking I could try evenity? thank you and best to all of you great people.

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Replies to "This is all helpful for me to read. I am 68 with severe osteoporosis. Fosamax did..."

Good afternoon @pulane. Welcome to Connect. How unfortunate that you are left without your endocrinologists or other specialist. That must be quite concerning. How far are you from Mayo Rochester? Would you be willing to go there? If so, there are several ways to seek assistance.

The best way is probably to use the online address at the top of the Connect home page. Right-hand side..." Request an appointment". The forms are self-explanatory and do not require any medical documents. Within 3 days you will be contacted by an admissions assistant for additional information or clarification. I requested a consultation with an endocrinologist and received an appointment within two weeks.

The appointment went extremely well and I am now on new treatment medication as well as being helped with my stability and strength to avoid falling. The follow-up has been quite supportive. In fact, if you would like to be introduced to my specialist you will find his name here on Connect. He not only shared his experience with all of the mentors but also wrote the heading for the discussion on the possibility of vacation from osteoporosis treatments.
Just click here........
https://connect.mayoclinic.org/discussion/need-an-osteoporosis-drug-vacation/
There is help for you. The other way to gain entry would be by a referral from your current medical professional. Please let me know how it goes. I am here for you.

May you be safe, protected, and free from inner and outer harm.
Chris

Hi @pulane,
As with all of us, we're individuals with a unique set of factors affecting our bone health. It can be difficult to find a doctor who will see you as a whole person rather than a bunch of different independent medical issues. I haven't had any luck finding the right doctor and treatment yet. My doctors are doing what they think is best, but they, like most, are used to just writing a prescription to treat the symptom rather than doing the research to treat the cause. On a side note, they are both approaching retirement, so even if they were doing all that I hoped they would, I would soon be in a similar situation to yours though in a much smaller community with fewer options nearby.
I'm disheartened to hear that you feel you need to go to the Mayo Clinic when you live in Madison with UW Health available to you. Among the health systems available to me through my insurance, though it's a bit of a drive for me, UW Health seems my best option. Because you feel you have to go elsewhere makes me curious about your experiences in Madison. Were your doctors who retired part of the UW system? Do you feel that they were willing to do the research into your unique situation when they so inconveniently retired? If anyone else here has consulted specialists at UW Health for osteoporosis treatment, what was your experience?
@pulane I hope that you have found a doctor you feel is the right fit for your needs. If you've already posted an update on your situation, please let me know where I can find it in the forum. I'd love to know how you're getting along.