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First Lanreotide Injection: Any tips about diet and side effects?
Neuroendocrine Tumors (NETs) | Last Active: Aug 16 7:34am | Replies (73)Comment receiving replies
Just to update my ongoing process: I am continuing to lose weight, so I tried to drink a Fairlife High Protein Milkshake in chocolate this week to add some fat and calories. The taste was quite good and I decided I could continue them until I spent the night with very crampy abdominal pains and woke to flushing on my face. I had read about some food items causing flushing, but I’m not sure what in the shake caused it. Was it the milk or the chocolate or perhaps some other ingredient? I receive my 3rd lanreotide injection on Aug 29 and a CT with contrast on Sept 8 to see if results are being accomplished. I am truly so appreciative to this group for everything I have learned from you
all!
Replies to "Just to update my ongoing process: I am continuing to lose weight, so I tried to..."
I did not tolerate well the milk shakes, probably due to milk, but also cacao is not ' a good friend" to NETs. I use protein powder, mixed with kefir and frozen berries.
I also became anaemic, so I eat eggs, avocado, liver, sardines. Because my NET is pancreatic with liver metastases and I have no gallbladder, I did not tolerate shrimp and most of the seafood. Swiss cheese, mozarella, goat cheese. Finally after 6 months post surgery I gained 2 lbs which stayed.
Slow and steady! I am up for my 6th Lanreotide and have a CT scan scheduled for September. Hope it will show good results.
We got this!💜🦓
I tried the protein shakes when I was recovering from my resection surgery. They contain a lot of fiber, and for me they caused bloating, diarrhea, and abdominal discomfort. That could be part of what you are experiencing.
I also did not not do well with Lanreotide, causing similar symptoms. I currently take Octreotide injections every 28 days.
Hope this helps!
Hello @nana120
As I've never had the monthly injections, I can't offer you any suggestions. It looks like many of the Connect members have shared from their experiences, though.
Have you talked with your oncologist's office to see what thoughts they might have on the weight loss and some of these other symptoms you are experiencing with the injections? If not, that might be a good place to start.
I am sure that you are looking forward to the results from your scan on September 8. Keep posting with your concerns and questions. This group is so helpful in supporting each other through this process!
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I have had 5 octreotide injections so far and have been loosing weight ( which I need to). Is that from this shot?