Success with Prolia?

Posted by yanice @yanice, Jan 4, 2023

Due to stomach issues, I have been advised to have intravenous injections to treat my osteoporosis. I am leaning towards Prolia. Does anyone have any success stories? It seems all I hear about are the awful side effects.

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Yes. I have osteoporosis and take about 20 suppliments every morning. The most important is 1200 mgs of Calcium. I also think Collegen is important, as well. The others? Too many to mention. Had a bone density test last December and it was better than the year before. My T score? I have no idea. Thanks for your note,

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@olderdiva12345

Yes. I have osteoporosis and take about 20 suppliments every morning. The most important is 1200 mgs of Calcium. I also think Collegen is important, as well. The others? Too many to mention. Had a bone density test last December and it was better than the year before. My T score? I have no idea. Thanks for your note,

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If you are considering Prolia please study this drug as it relates to pain and jaw problems. Think long and hard befofe you begin a regime of this.

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@windyshores

@lucychristine46 what is PMR. I seem to react to everything as well. I have autoimmune disorders and kidney disease, not sure if those account for it but my sensitivities date back to treatment for Lyme.

I tried to get on various osteoporosis meds for years and even saw an immunologist to help me. As I have written before on this site, I finally managed Tymlos because the dose is adjustable, and I could start low and move up cautiously. I have now been on it almost two years with wonderful results.

There is discussion on this elsewhere but sequencing is important and it would probably be better (McCormick, Leder MD, my doc) to start with a bone builder (Tymlos, Forteo, Evenity) before an anti-resorptive (bisphosphonates, Prolia) to have the most effective treatment.

Getting off Prolia is tricky. The standard thing is to do Reclast 6 months after your last Prolia but for some that is too early (in which case Reclast won't work) and for some it is too late (in which case bone density drops and fracture risk rises). McCormick discusses this in his book "Great Bones" as others have said. My doc doesn't use Prolia for this reason but McCormick uses the CTX and P1NP blood tests. I get those through my PCP and see McCormick as well as my endocrinologist.

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Windy shores , is your DR McCormick connected to the Mayo Clinic ?
What great info . I guess I need to start with my PCP .
What exactly does an endocrinologist look at to determine what would help one’s osteoporosis?

Can you tell me your T score ?

PMR is polymyalgia rheumatica , an autoimmune condition that affects the bodies muscles .

Thank you for your guidance

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@lucychristine46

Windy shores , is your DR McCormick connected to the Mayo Clinic ?
What great info . I guess I need to start with my PCP .
What exactly does an endocrinologist look at to determine what would help one’s osteoporosis?

Can you tell me your T score ?

PMR is polymyalgia rheumatica , an autoimmune condition that affects the bodies muscles .

Thank you for your guidance

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Dr, McCormick is a chiropractor in western MA who is an expert on osteoporosis and has written two books: "The Whole Body Approach to Osteoporosis" and "Great Bones." "Great Bones"" is 700+ pages and deals more with meds than the first book. He does consults by phone and in person. First appointment is $300 then it goes down.

I have an endocrinologist who guides my treatment so for me McCormick is a supplementary opinion. Besides he cannot prescribe or order tests.

My spinal t-score has gone from -3.6 to -2.5 after two years of Tymlos.

PCP's tend to start you on a bisphosphonate or Prolia. I would find an endocrinologist. Rheumatologists can also treat osteoporosis and sounds like you might have one.

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@olderdiva12345

Yes. I have osteoporosis and take about 20 suppliments every morning. The most important is 1200 mgs of Calcium. I also think Collegen is important, as well. The others? Too many to mention. Had a bone density test last December and it was better than the year before. My T score? I have no idea. Thanks for your note,

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Your body will only absorb only so much of your supplements so I hope that you are dividing them up otherwise you are peeing them out.

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You are most likely correct. I am to see my physicain in a few weeks and will discuss this among other things.

Many thanks, keistie2

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@windyshores

Dr, McCormick is a chiropractor in western MA who is an expert on osteoporosis and has written two books: "The Whole Body Approach to Osteoporosis" and "Great Bones." "Great Bones"" is 700+ pages and deals more with meds than the first book. He does consults by phone and in person. First appointment is $300 then it goes down.

I have an endocrinologist who guides my treatment so for me McCormick is a supplementary opinion. Besides he cannot prescribe or order tests.

My spinal t-score has gone from -3.6 to -2.5 after two years of Tymlos.

PCP's tend to start you on a bisphosphonate or Prolia. I would find an endocrinologist. Rheumatologists can also treat osteoporosis and sounds like you might have one.

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As a follow up to @windyshores information. I had an appt with McCormick last week . Apparently appt costs have increased .. it was $350 for the first 1 hr appt , I believe it’s $185 for half hr , and 85 for 15 minute follow ups. He did want more testing for me , and he said he could do the labs in any states except NY and NJ as their regulations are just too crazy to deal with. I’ve already got them ordered through my endo. I recently had met with her and told her of my consult upcoming and asked if she’d be willing to work with him and she had agreed. I feel fortunate. She became aware that I had Osteo knowledge and wasn’t going to take any meds till I understood all I wanted to know , and felt good about that decision. Good luck to you!!!

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@windyshores

Dr, McCormick is a chiropractor in western MA who is an expert on osteoporosis and has written two books: "The Whole Body Approach to Osteoporosis" and "Great Bones." "Great Bones"" is 700+ pages and deals more with meds than the first book. He does consults by phone and in person. First appointment is $300 then it goes down.

I have an endocrinologist who guides my treatment so for me McCormick is a supplementary opinion. Besides he cannot prescribe or order tests.

My spinal t-score has gone from -3.6 to -2.5 after two years of Tymlos.

PCP's tend to start you on a bisphosphonate or Prolia. I would find an endocrinologist. Rheumatologists can also treat osteoporosis and sounds like you might have one.

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Wow., Windy. Good for you. Your t-score improvement over 2 years, and at a reduced Tymlos dosage (as I understand your postings) is impressive.

McCormick's expertise apparently developed because of his own severe osteoporosis diagnosis discovered while he was a very competitive athlete. He took a deep dive into the field to find a way to deal (successfully) with his own situation.

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@rjd

Wow., Windy. Good for you. Your t-score improvement over 2 years, and at a reduced Tymlos dosage (as I understand your postings) is impressive.

McCormick's expertise apparently developed because of his own severe osteoporosis diagnosis discovered while he was a very competitive athlete. He took a deep dive into the field to find a way to deal (successfully) with his own situation.

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@rjd it is important to note that McCormick used meds. His practice is for those who want to pursue holistic approaches but also those who need meds.

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@windyshores

Dr, McCormick is a chiropractor in western MA who is an expert on osteoporosis and has written two books: "The Whole Body Approach to Osteoporosis" and "Great Bones." "Great Bones"" is 700+ pages and deals more with meds than the first book. He does consults by phone and in person. First appointment is $300 then it goes down.

I have an endocrinologist who guides my treatment so for me McCormick is a supplementary opinion. Besides he cannot prescribe or order tests.

My spinal t-score has gone from -3.6 to -2.5 after two years of Tymlos.

PCP's tend to start you on a bisphosphonate or Prolia. I would find an endocrinologist. Rheumatologists can also treat osteoporosis and sounds like you might have one.

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Thank you again for adding to my knowledge of treatment for osteoporosis. I am just in the beginning stages of learning and live in NYS . Do you know if the blood tests P1NP and CTX give guidelines on how to treat one’s osteoporosis based on the results ?

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