Hi @pamrod02 I haven’t found anyone specifically with the diagnosis of CCUS. But there are certainly quite a few members in the forum with similar symptoms as yours; Anemia without an obvious cause. If you haven’t already, this link below might be of interest to you.

Iron Depletion in Blood related to COVID?

Did you receive a covid vaccination or have the virus?

I had my first appointment at the Mayo Clinic the first part of August.
I have low white cell counts , Low platelets, and low neutrophils. Bone marrow biopsyas normal, but there were a couple of minimal mutations. Possibly CCUS. had a blood draw which has been sent to Rochester Minnesota for further examination. ( Next generation sequencing )
what other issues do you have?

I was diagnosed with CCUS in October. I’m 66 years old and have always had ITP or low blood platelets. As I was checking for my numbers for my platelets I saw that that my white blood count was extemely low and that’s how all this started - that was in August. I went through all the testing, including a bone marrow biopsy, which they did find small amounts of cells that were abnormal. I was at Mayo in October and won’t see my doctor again until end of January. Right now they want to monitor my blood draws, check with other doctors and try to see what, if anything, they’re going to do. As my doctor said they want to be very sure exactly what is wrong because the remedies for most of this are quite toxic and they need to be sure of what needs to be done. It’s hard to wait because the numbers are so low I need to do quite a bit of isolating, anxious to see what we’re going to do.