Hello. I investigated Proton Beam treatment for a meningioma that was found approximately 16 months ago. This tumor is not treatable with surgery or radiation. It can't even be biopsied bc of location. In my independent research of Proton Beam therapy, I learned that it's not radiation. It's not like Cyberknife, etc. Therefore, there isn't tissue destruction that occurs with actual radiation. However, for meningiomas, it does not typically result in tumor reduction. The goal for this is solely to stop tumor growth. This is the limitation of the quantum particle used to attack the tumor and the resistance to destruction of the meningioma tumor itself. The unique benefit that is available with Proton Beam therapy is that this is the only approach that is a consideration for tumors that are located in areas sensitive to consequences for collateral damage, that risks are to high for any other treatments. Proton Beam therapy is used often where the goal includes preserving surrounding tissue. The desired outcome for meningioma treatment is tumor restriction of growth and preservation of surrounding tissue. This is not to say that there may not be some impact upon other adjacent tissue. It's possible. This therapy requires many sequential treatments for meningioma. But since it's not radiation, (which can treat a cancer tumor in as little as a single treatment) there are few after- effects with sessions. The number of Protons Beam machine are increasing across the country. Insurance usually covers the treatment because it's standard and not experimental.
My status is that I'm stable. It appears that the tumor reached an end to growth in the past. I have some blood brain barrier damage and a small amount of cerebral edema at the site of the tumor. The edema is treated with low dose steroids if symptomatic. Occasional steroids resolve limited symptoms associated with the tumor. I have an upcoming MRI. My neurosurgeon said if it's unchanged, I'll be discharged. If they is a problem, we'll revisit the treatment plan.

I'm working on recovery from severe post Covid19 syndrome. That's been my primary struggle. I found an excellent doctor for this problem and I've made noteworthy gains in this area. But I don't have my life fully back yet. But I have significant restoration. Especially in the area of cognition and energy.
As always, I recommend that you carefully evaluate all non- professional information you read and hear. Experiences of others are helpful. Support is sustaining. But medically based information should always be verified. That's for everything you encounter in the Internet. Tho this forum is wonderfully moderated.
Wishing you the best.
Blessing,
RanchoSanteFeCowgirl