Anyone with CKD can give me answers or advise?

Posted by sallylynn @sallylynn, Aug 23, 2023

Hello. End of second week of July I got a yeast infection. OTC Montistat 1 day oval. 2 days later felt improvement. Several days later, symptoms of UTI. Waited few days. Called Clinic. Went in for labs. Confirmed. Recommend do another round of OTC treatment. I did. RX prescribed Cefpodoxime 5 days, 2 pills a day. However, before I started RX, suddenly I got these skin sensations: prickly, pins& needles, itchy skin random. Even my eye lids & inside my ears. Last night my breasts were tingling.Comes and goes. I have NO rash. This is been going on for near a month. July 27 started feeling Kidney pain through the night until July 28. Called clinic. Concerned my UTI spread into Kidneys. Advised to go to ER. At ER July 28 all blood/urine tests done.My eGFR was 68. Creatinine 0.95 BUN 13. All in normal range. I asked ER doctor why I was having this skin sensation & he did not know why. Sent home. Went to my clinic for follow up on 07/31blood work & urine. My creatinine rose to 1.05 my BUN rose to 18 & my eGFR lowered to 60. Can I assume this was from the Cefpodoxime? I went back to clinic 08/07 for urinalysis labs ( I asked for another Basic Metabolic Panel, doctor refused. My urine looked good except Hemoglobin. This time, on Aug.7 the word TRACE was there. This is the first time ever this has happened. With my trends all were negative prior. Of course I My Chart my Doctor with concerns. My Doctor's response was this: "As for your urine lab results, trace hemoglobin is not concerning as the microscopy findings did not show any RBCs". As of current, I do not know what my eGFR is, my creatinine or my BUN. I had to remind my doctor since I trend in the 50's for my eGFR we both should "Be concerned" of my trends. She then put in a lab order for a BMP. I guess because my eGFR was "60" I was "Stabilized" but not considering 80% of my eGFR's are in the 50 range. I should point out on June 3rd I had a CT/Contrast at ER. I will regret that for the rest of my life. So here are my questions if anyone wishes to answer, is my skin sensations related to my kidneys? Could I possibly be having adverse affects a little over a month AFTER my CT/Contrast scan? And what could cause my Hemoglobin Urine test to say TRACE. I go in on 09/11 for a BMP after I had to ask for one. Anyone who has thoughts about this would be greatly appreciated. Thank you.

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@sallylynn

Hi Ginger. It is 3 in the morning. I am in pain. My bones in my legs hurt. Yesterday my ankle bones were hurting and the front of my calves. As well feeling pain in hips and down my buttocks. The tingle burning sensation comes and goes. When I was settling in for the night both my legs were tingling bad. I am scared and I for the last few months I am dying slowly. I think I am going to have my son take me to the ER. In a few hours . I have 2 hours of sleep can't sleep. Either I am experiencing delayed iodine reactions, or my kidneys are in trouble or I don't know what else. I know something is terribly wrong. I forgot to mention my legs do feel weak. As I type my face is tingling all over.

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I have been on Lisinopril since 2018. I have never had a problem.

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@sallylynn, have you thought about asking your doc for a referral to a nephrologist? A neph could order several studies to see what's going on. I have CKD with an eGFR in the 30s and am very happy about that considering I once was on dialysis and at stage 5 but I do have itching we think is related to decreased renal function. A neph might be able to tell you more.

Also, have you considered finding out about a renal diet? This has helped me a great deal.

Best wishes in your search for answers.

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My eGFR is only between 17 and rarely the highest of 20....they took me off the lisinopril but it doesn't seem to make any difference from what I can see for me.

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@sallylynn I had oral iodine contrast. You should recover from the contrast. It seems unlikely that your kidneys are causing symptoms from what I have been told. Your eGFR is not bad.

Over 20 years I have had to keep in mind that numbness and tingling, for me, is not life-threatening or even health-threatening. I am used to it. But since your symptoms have popped up suddenly and recently I hope you can see a neurologist!

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@windyshores

@sallylynn I had oral iodine contrast. You should recover from the contrast. It seems unlikely that your kidneys are causing symptoms from what I have been told. Your eGFR is not bad.

Over 20 years I have had to keep in mind that numbness and tingling, for me, is not life-threatening or even health-threatening. I am used to it. But since your symptoms have popped up suddenly and recently I hope you can see a neurologist!

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Hi Windyshores. I am going to the ER, my Son will drive me there. I have gotten more concerned with the bone pain now. I had no sleep. Yesterday both my ankles were hurting and pain in my bone in the front my calves. I slept horrible. My face feels like when you open the oven and you feel the heat waves hit you. I cried this morning. I pray they will not send me home from the ER until they find the cause of this.
I had intravenous contrast. I will be leaving shortly. You have been so kind to me. That helps tremendously.

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@kamama94

@sallylynn, have you thought about asking your doc for a referral to a nephrologist? A neph could order several studies to see what's going on. I have CKD with an eGFR in the 30s and am very happy about that considering I once was on dialysis and at stage 5 but I do have itching we think is related to decreased renal function. A neph might be able to tell you more.

Also, have you considered finding out about a renal diet? This has helped me a great deal.

Best wishes in your search for answers.

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Not yet. This started almost a month ago. I was in ER July 28, and talked to the Doctor about this and he just prescribed benedryl. I asked him point blank is this related to my kidney function and he said no. They just sent me home. I am leaving for the ER now. When I get home I will let you know what they said.
I have researched the renal diet and I have made adjustments.

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@sallylynn

Hi Windyshores. I am going to the ER, my Son will drive me there. I have gotten more concerned with the bone pain now. I had no sleep. Yesterday both my ankles were hurting and pain in my bone in the front my calves. I slept horrible. My face feels like when you open the oven and you feel the heat waves hit you. I cried this morning. I pray they will not send me home from the ER until they find the cause of this.
I had intravenous contrast. I will be leaving shortly. You have been so kind to me. That helps tremendously.

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@sallylynn We all will be interested to hear what the doctors say. Getting in to see a nephrologist may help ease your mind, also. The itching could be from an electrolyte unbalance, seeing that you have been experiencing several different issues. I am surely hoping you will achieve some peace of mind today, not to mention peace of physical body.
Ginger

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@sallylynn

Hi Windyshores. I am going to the ER, my Son will drive me there. I have gotten more concerned with the bone pain now. I had no sleep. Yesterday both my ankles were hurting and pain in my bone in the front my calves. I slept horrible. My face feels like when you open the oven and you feel the heat waves hit you. I cried this morning. I pray they will not send me home from the ER until they find the cause of this.
I had intravenous contrast. I will be leaving shortly. You have been so kind to me. That helps tremendously.

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@sallylynn my face feels like that all the time! I get it. The bone pain sounds awful. So sorry you are going through this and let us know what the ER says.

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@gingerw

@sallylynn We all will be interested to hear what the doctors say. Getting in to see a nephrologist may help ease your mind, also. The itching could be from an electrolyte unbalance, seeing that you have been experiencing several different issues. I am surely hoping you will achieve some peace of mind today, not to mention peace of physical body.
Ginger

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Hello Ginger. Home from the ER. They ran many tests. Everything looks good with blood tests and urine. They concluded I do have neuropathy however they cannot explain why since all my tests came back normal. The Doctor prescribed Gabapentin for me take and at first take at night. He said if this does not resolve, my Primary needs to refer me to a nephrologist. As for the bone pain the Doctor said the neuropathy very well could be doing this. They gave me a pill when I was settled in my ER room.I forgot the name of it, I think it started with the letter A to help taper the pain and symptoms of the neuropathy. I was elated Ginger everything came back good. Praise God. I did bring up delayed Iodine Contrast adverse reaction to them as a possibility why this is happening to me, but they were adamant that my neuropathy was not from my contrast. End of that discussion.I pray I get sound sleep tonight. I think I had maybe 2 hours. I am going to take my first dose of Gabapentin about an hour before I go to bed. I sure hope it helps.

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@windyshores

@sallylynn my face feels like that all the time! I get it. The bone pain sounds awful. So sorry you are going through this and let us know what the ER says.

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Hi Windyshores. I wrote to Ginger about my ER visit as well. Al my tests came back good. They said I do have nephropathy but they can not give me a reason why. They totally ruled out Delayed Iodine Contrast adverse reaction. They don't believe in it. They made that clear. I was prescribed Gabapentin and I will take my first dose tonight. I hope it works. I was told my Primary should refer me to a nephrologist if this does not resolve. I was elated my tests came back good, but I sit here with neuropathy and no answers.They actually told me before the draw blood for all the tests, there was a good chance they would not find the answer, Even after the medication they gave me for relief in Hospital I still have the sensations. I still think in the corner of my mind this still could be delayed nephropathy from the contrast, but they will not agree.

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