Hi @pn1998, welcome. Can you share a bit more about your experience with high-grade endometrial stromal sarcoma? How was it discovered? What treatments have you had?

Hi there, my mother, who is 61, was recently diagnosed with High Grade Endometrial Stromal Sarcoma officially after a full hysterectomy. Post surgery CT scans are “clear” but she is currently receiving radiation as the chance of recurrence is high and it was found in I believe 2 lymph nodes that were also removed. Back in Sept 2023 she noticed just a small red dot on her labia which prompted her to go to her OB. All research articles I read on this include mostly those who have had it spread to the lungs and or other parts of the body. Trying to figure out prognosis…etc etc. Welcome to reach out if needed. Surprisingly my mother has worked hard at maintaining a positive outlook and is trying hard to stay in good spirits -L