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A Summary of My Multiple Myeloma

Blood Cancers & Disorders | Last Active: May 6 6:22pm | Replies (36)

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@ranger358

I'm glad to know your treatment was successful. I just finished my 100 days after transplant and received the same good news as you. I'm in remission with no trace of the disease. Starting the 10m dose of revlimid. Praying for your continued progress. By the way, I was diagnosed in September of last year just like you.

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Replies to "I'm glad to know your treatment was successful. I just finished my 100 days after transplant..."

Glad to hear about your remission! We are on the same schedule. Interestingly, my provider thinks that the mouth sores that I mentioned (after taking the 10m dose for a couple of weeks) are likely caused by neutropenia related to Revlimid (rather than a side effect). So after a month of Revlimid we are pausing. My mouth is already improved. I haven't gotten a new treatment plan yet.

We are just coming up on Day 100 and another visit to Mayo Clinic Rochester next week. My wife was MRD negative going into the transplant, so we fully expect to be MRD negative afterward. We used Revlimid through six months (eight three week rounds) of chemo, and had only minor side effects. I have read in the literature that some oncologists now consider the possibility of eliminating maintenance with Revlimid if there have been two MRD negative results several months apart. We will see what the doctors recommend next week.

The very good news about the BMT phase is that we have yet to need even a single day of inpatient care, having had no noticeable infections, and no visits to the ED at the local hospital. During the preceding months of chemo we visited the hospital with infections three times. We are very thankful for the care from the transplant team, Eisenberg 9-4 and accommodations at the Gift of Life house that enabled this outcome. We live in a rural area, and have family members who have understood the importance of keeping their distance during the first 100 days. And, of course, we acknowledge God's healing grace at work.