I have stage 4 Mets to colon which seems to be resolved for now, have atypical cells in peritoneum, and recently had Mets to ovaries, which they removed. It was strange bc after I yelled to Mayo initially, they said I had to send my records and they would decide if they wanted to see me. I didn’t submit my records bc I felt it was such a long shot. They called me like 2 weeks later and offered my appointments and said they had all my records, which I never released. (HIPPA). So not sure what happened.
I have stage 4 Mets to colon which seems to be resolved for now, have atypical cells in peritoneum, and recently had Mets to ovaries, which they removed. It was strange bc after I yelled to Mayo initially, they said I had to send my records and they would decide if they wanted to see me. I didn’t submit my records bc I felt it was such a long shot. They called me like 2 weeks later and offered my appointments and said they had all my records, which I never released. (HIPPA). So not sure what happened.
I have been trying to get appt with Dr Grotz and it’s been quite frustrating. I have stage 4 adenocarcinoma - diffused gastric cancer. I will keep on trying, because he seems to be terrific! Thanks for sharing Dave
Best of luck keep trying one of my oncologist got me in to have him do my surgery at the time I have not heard of him they call Dr.Grotz ( The Man ) and I will have to agree I am living proof 🙏🏻🙏🏻😁
Hi Lisa, I’m seeing Dr Grotz next Tuesday. Not sure I even want to go thru HIPEC. Are you doing chemo at this time. I’m on FLOT with OPDIVO. It’s a huge surgery. Been watching lots of u tube videos and scaring the crap out of myself.
Best of luck keep trying one of my oncologist got me in to have him do my surgery at the time I have not heard of him they call Dr.Grotz ( The Man ) and I will have to agree I am living proof 🙏🏻🙏🏻😁
No no Mets when he did my total gastrectomy he had 27 of my lymph node’s checked for cancer of any kind and All came back negative I am very thankful I still get my CT and bloodwork every 3 months. Be well Dave
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What is MCKSS?
That’s interesting to m ow. With so many different procedures available, how do you know who to go to?
Best of luck keep trying one of my oncologist got me in to have him do my surgery at the time I have not heard of him they call Dr.Grotz ( The Man ) and I will have to agree I am living proof 🙏🏻🙏🏻😁
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1 ReactionI’m on FOLFOX. I haven’t watched any of the videos but it all sounds scary. I understand
Thank you. Did you have HIPEC with him?
MSKCC is memorial Sloan Kettering cancer center. They are very rigid (imo) with “standard of care”. Tell me about you and how it went there please
I e never been to Sloan. I will let you know next week how it went at Mayo
No Hipec he did my total gastrectomy in August of 2022
You are doing well? Did you have any Mets
Pls?
No no Mets when he did my total gastrectomy he had 27 of my lymph node’s checked for cancer of any kind and All came back negative I am very thankful I still get my CT and bloodwork every 3 months. Be well Dave