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@karukgirl

It is so incredible really that so many of us seem to have the same experience of being misdiagnosed for years! I am so glad to hear you are feeling better now. For me that awful shortness of breath on the least amount of exertion, the tachycardia and head rushes just tying my shoes...it all disappeared right after surgery. It's no wonder you don't have much stamina...you just went through open heart surgery!!! It will take some time to get that back. One day at a time. I would guess that you also had blood loss anemia...that takes time to recover and will make you super tired besides everything else you are going through. Sounds like you are a champ! You are active and the hard part is behind you. I think the decision to go forward with open heart surgery is the hardest part of this whole deal. Once you make the decision, things just fall into place. I hope you never get atrial fib again too! Sounds freakishly scary! When do you see the cardiologist next? Did you write down any questions for him/her for next visit?

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Replies to "It is so incredible really that so many of us seem to have the same experience..."

You know, I was feeling so badly. My heart rate was erratic ( my heart would thumb now & then) in addition to always feeling tired and having shortness of breath with little exertion, I was longing for some kind of solution. I never dreamed it would be open heart surgery. As no medications were helping, it was an easy decision, especially after speaking with Dr Ommen and learning about The Mayo Clinic’s program. I actually was relieved the day I was given my surgery date. I just knew I would feel much better after recovery.
I will see my cardiologist Wednesday, Aug 30. I have a list of questions prepared. He ordered a 48 hour heart monitor and echocardiogram which I completed in June. I am very interested in discussing the results with him and seeing how I have progressed. I will also be asking about stopping Xarelto and lowering metoprolol. Thank you so much for your feedback, words of encouragement and advice!!