Connect
← Return to Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!
Discussion
Acute Myeloid Leukemia (AML) - Treatment of 75 year old is working!
Blood Cancers & Disorders | Last Active: Jul 3 2:36pm | Replies (27)Comment receiving replies
Not yet…but I will post as soon as she starts. Having a hard time getting the dr office to respond to requests for information after initial diagnosis. Waiting on a referral to go to a different doc for 2nd opinion and responses 🤦🏻♀️ The dr said enasidenib or palliative blood transfusions would the treatment path. After hearing and reading studies about the use of venetoclax and azactinine we’ve been trying to get answers from the doctor but they haven’t returned any calls. Very frustrating, especially since it’s a fast progressing form of luekemia. Hopefully we’ll know soon!
Replies to "Not yet…but I will post as soon as she starts. Having a hard time getting the..."
Good morning @pegsue23 It’s important your mom starts treatment very soon. You may need to be more assertive with getting answers from your mom’s doctor.
I know you’re thinking of changing doctors but time is of the essence. If that can’t be worked out within the next day or so, I’d suggest staying with the current doctor for the time being to at least get her started with the Enasidenib and then switch to Venetoclax and azactinine if necessary. But to be honest, from my experience with AML and your mom’s current blood numbers treatment, shouldn’t wait another day…timing is critical.
Did you ever hear back from the doctor??
Connect
That sucks big time that she can't get a second opinion quickly. Does the doctor's practice have a portal? That's where I get some of the information for my husband.