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Osteoporosis treatment for post kidney transplant women

Transplants | Last Active: Aug 25, 2023 | Replies (19)

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@hello1234

Hi @yani2023 😊
I am a 3 year post kidney transplant patient in your exact situation.
I have osteoporosis that needs attention and I am scared to death of the adverse effects of all the current bone medications.
Prolia was recommended to me too.
I know people that took osteoporosis meds and broke their femur bone. I know people that did not take osteoporosis medication and broke their femur bone.
I know family members that have been on Prolia for years with no problems at all.
I know that dental implants are probably in my future and jaw necrosis sounds like an awful adverse effect for an immune suppressed patient. A broken bone sounds terrible.
I just had a bone density test and according to the numbers I should start my Prolia now. It's a very tough decision for me too.
Are you leaning towards taking the shot?

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Replies to "Hi @yani2023 😊 I am a 3 year post kidney transplant patient in your exact situation...."

Hi, ABSOLUTELY NO PROLIA for me.
I will be researching and having an appt. with a NYC nephrologist different medications who has been part of research for osteoporosis medication. My transplant dr who are very young just referred me to orthopedic specialist.
Prolia will not be on the list of any of the medication I may choose. The orthopedic dr I had an appt with initially who recommended Prolia was asked how many transplant patients he had treated and he would not answer me. When I asked if any other medications he could recommend he told me to make another appointment. The fact answer this doctor could share any information about other transplant patients( with no names of course) concerned me. IT may have been he had not treated a transplant patient ever?
We are in a class of our own. Each transplant patient is different I understand. I just wanted to know other womens's experience was after taking Prolia. I understand each person will have. a different reaction. I am glad some individuals have not had any dental issues while others have. . Yes, I also am aware some women who have been on medication to no avail. Some have broken bones which kicks women and maybe some men into total depression.
There probably isn't one perfect medication. Being monitored probably is the best tool to determine if a medication is working and sustaining in addition to improving our bone health. Transplant patients have to be cognizant of how anti rejection medication will interact with medication for osteoporosis understand each person has a different body chemistry with medication is prescribed for different medical conditions. IF a doctor is honest and can explain the side effects with certain medication and patients experience and be totally truthful that a plus. Thanks again.