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Trouble eating with HCM

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 10, 2023 | Replies (38)

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@mopostorino

Hi Debra! Well, sorry for the late reply. We have been moving our daughter to college, so been a bit out of pocket the past few weeks! Thank you for your note and welcome. I am happy to connect and learn of others' experiences on this road we walk. I am on a beta blocker, which my doctor wants to increase, but I'm doing that slowly, as, of course as you know, it makes you tired and workouts are more difficult. Glad you were able to have surgery. Did it help? I found out I had HOCM in my early 30's after a routine visit to an internal specialist who was also a cardiologist. He did routine EKG's on all patients and mine was highly irregular. After that, we did an echo and of course, it was diagnosed immediately. Since then, however, I have noticed that, in times I have taken off from strenuous exercising (which I have done since I was 16), my septal thickness improves. Hard to find a balance in the exercise sphere for me. I have a hard time finding that "moderation" space, you know? Well, anyway, nice to get your note and hope you are feeling well! All the best, M

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Replies to "Hi Debra! Well, sorry for the late reply. We have been moving our daughter to college,..."

Hey there @mopostorino! Thank you for getting back. Sounds like you have a LOT going on! I'm so glad you found Connect. There is something special about being able to share with other people who are walking around out there with the same condition. We are all different ages, come from different places, have different backgrounds, but we share HOCM/HCM in common and that brings us together.
It seems you are a pretty active person and have been all your life...that is the best thing you could do no matter what condition you may have. I was super active until HCOM took me down, but yes, thank you for asking, the surgery gave me back my life and I am so very grateful. I learned to listen to my heart telling me what I could do or not do that day. It seemed to me that I had good days where I could do anything, and other days where just hanging laundry on the line was taxing. But learning to listen to my heart helped me no be so hard on myself when I had those bad days. I don't have bad days anymore, thankfully, but besides being older now, I also have accepted I'm probably not going to start running again, or go hiking huge, steep mountains like I used to. You are blessed to have been diagnosed early. That isn't typical for many of us HCM folks. Are you being followed closely by your doctor? Has your daughter been tested to see if she has this?