← Return to Trouble eating with HCM
Discussion
Hypertrophic Cardiomyopathy (HCM) | Last Active: Jul 24 1:40am | Replies (39)
Comment receiving replies
Replies to "Hi Debra! Well, sorry for the late reply. We have been moving our daughter to college,..."
Hey there @mopostorino! Thank you for getting back. Sounds like you have a LOT going on! I'm so glad you found Connect. There is something special about being able to share with other people who are walking around out there with the same condition. We are all different ages, come from different places, have different backgrounds, but we share HOCM/HCM in common and that brings us together.
It seems you are a pretty active person and have been all your life...that is the best thing you could do no matter what condition you may have. I was super active until HCOM took me down, but yes, thank you for asking, the surgery gave me back my life and I am so very grateful. I learned to listen to my heart telling me what I could do or not do that day. It seemed to me that I had good days where I could do anything, and other days where just hanging laundry on the line was taxing. But learning to listen to my heart helped me no be so hard on myself when I had those bad days. I don't have bad days anymore, thankfully, but besides being older now, I also have accepted I'm probably not going to start running again, or go hiking huge, steep mountains like I used to. You are blessed to have been diagnosed early. That isn't typical for many of us HCM folks. Are you being followed closely by your doctor? Has your daughter been tested to see if she has this?