Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@mari

In the FaceBook there is an ad? for
Welcome to Genes for Good!
Before we jump in let's review how the study works in four slides.
After that, since this is a research study, we'll take you through a consent form. It lays out your role in the study, including the benefits and risks of participating. Please read it carefully!
What do u think - did you join?

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Looked at the info but didn't start the survey or join. Need to find some time as I think it might be beneficial.

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One of my friends said "use Vicks on your feet before going to bed and put on some white sox" so, I did. I tasted Vicks for two days ... but it helped - besides that my feet are nice 'n soft. My question is... is there a downside to using Vicks (or similar product) in this manner>

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@mfobrien36

One of my friends said "use Vicks on your feet before going to bed and put on some white sox" so, I did. I tasted Vicks for two days ... but it helped - besides that my feet are nice 'n soft. My question is... is there a downside to using Vicks (or similar product) in this manner>

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Hi Mary, I'm sure it's OK. I haven't used Vicks but I have used products like IcyHot and regular Vaseline to help with dry/cracked skin. I also use white diabetic socks at night that are loose fitting. This is important for folks with peripheral neuropathy in the feet as you sometimes can't feel what you are stepping on/in and can injure your feet.

John

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John, I am with you with the socks. I buy Wigwam brand diabetic socks. The only brand that I can stand to wear with shoes or without. I also wear them to bed because even the feel of sheets, blankets bother my feet.

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@mfobrien36

One of my friends said "use Vicks on your feet before going to bed and put on some white sox" so, I did. I tasted Vicks for two days ... but it helped - besides that my feet are nice 'n soft. My question is... is there a downside to using Vicks (or similar product) in this manner>

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I buy Wigwam brand diabetic socks, mostly white and the largest size they have. I cannot wear anything else.

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I have neuropathy in my feet and fingers. It is a side effect of the Taxol chemotherapy I finished in October. No improvement after 3 months.

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@caf132

I have neuropathy in my feet and fingers. It is a side effect of the Taxol chemotherapy I finished in October. No improvement after 3 months.

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WHAT ARE U ASKING FOR? U DO NOT SAY ANYTHING BUT THAT:NO MENTION OF A NEUROLOGIST'S VISIT,NO MENTION OF TAKING ANY MEDICATION FOR THE CONDITION:NOTHING!!

IF U HAD VIEWED THIS DIGEST OVER THE PAST FEW MONTHS U WOULD HAVE SEEN MANY MEDICATIONS MENTIONED:LYRICA,GABAPENTIN AND OTHERS.

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@caf132

I have neuropathy in my feet and fingers. It is a side effect of the Taxol chemotherapy I finished in October. No improvement after 3 months.

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Welcome to this discussion about neuropathy @caf132. Neuropathy can be caused by many things, including chemo drugs. Sometimes the neuropathy will go away with time, sometimes it is permanent. Three months may not be long enough to know for sure in your case. Do you have any other conditions that may be contributing to the neuropathy, like diabetes for example?

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@caf132

I have neuropathy in my feet and fingers. It is a side effect of the Taxol chemotherapy I finished in October. No improvement after 3 months.

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@ujeenjack, not everyone comes to this forum with a question. It's not mandatory. Sometimes people just want to talk. I agree with you that reading through past messages gives a wealth of information, and thank you for your contributions.

May I suggest that you not write in ALL CAPS please. All caps are considered shouting in online communications. You can read the Community Guidelines where it is stated not to use all caps https://connect.mayoclinic.org/community-guidelines/
Thanks

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@caf132

I have neuropathy in my feet and fingers. It is a side effect of the Taxol chemotherapy I finished in October. No improvement after 3 months.

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Hello @caf132 - I have been battling neuropathy for a lot of years. Last year it got so disrupting t my life, my primary doc referred me to a neurologist. After many tests,sticking me, and electrocuting me, it was determined that mine was caused by not enough vit b-12. I had been taking vit b12 shots and 300mg of gabapentin a day. he upped my vit b-12 by having me taking 5000 mgs under tongue and upped my gabapentin to 900 mgs a day It calmed everything down to where it is no longer driving me crazy. Have your doc test your vit b12 levels It could be the chemo caused you to be low.

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