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DiscussionAllodynia: Anyone else sensitive to touch?
Neuropathy | Last Active: Aug 30 5:28am | Replies (148)Comment receiving replies
Replies to "I am just learning about Allodynia. My pain is mostly from my shoulders to my waist..."
Sounds like you have the exact type of allodynia I have. Same symptoms, and location on the body. I got mine very suddenly in late March of this year. I've been diabetic for 40+ years, and on insulin for most of that time. I don't have trouble sitting in a chair, as long as there's no movement across my back. My husband and I recently took a road trip, and riding in the car, with the seat's movement as we drove across the pavement, and especially hitting potholes, was, I would say "agonizing" but it was a month long trip so I just had to buck up and tolerate it as best I could.
The weird thing was that no doctor I saw, dermatologist, endocrinologist, PCP, knew anything about it. Had never heard of it or knew what it was called. It wasn't until I saw a neurologist that I got any clues (or hope) about what it was. He said that it was probably related to my diabetes AND my alcohol use. That the nerves would regenerate in about 8 months if I kept my diabetes under control (I always have done) and quit drinking. I didn't think I was drinking that much, but. . .so I quit one month ago, and we'll see.
Shortly after the allodynia started, I also started having twitching and jerking in my hands and legs, and trouble with my balance. The neurologist said that would get better, too. And it has! After one month w/o alcohol. So I have hope that the allodynia will also get better.
So, forgive me if all of this is way off track of what you are experiencing. I don't know if you drink at all, or have the ol' diabetes. I don't have fibromyalgia, so our paths may diverge a lot. I do hope you are seeing the proper doctor, and get good treatment. I forgot to mention that I take Gabapentin (Neurontin) for the pain, and it helps a lot, though doesn't completely eliminate it.
Good luck to you, and best wishes.