Here is an example as to why a NET specialist is necessary. My husband had an emergency hernia repair that the surgeon on call at the ER happened upon a small tumor in the small intestine that he removed and resectioned the SI. It was NET primary source. We then got a NET specialist both oncology and a surgeon. CT, PET, Blood work lots of research on the cancer. It had metastisized to the liver and lymph nodes. Surgery was done to resection the liver and remove lymph nodes, part of the surgery they removed his entire small intestine to FEEL for other tumors. 5 more tumors were found on the outside of the SI, 2 feet removed and resectioned. They did not show up on any scan, too small. I am not confident a surgeon not familiar with NET would do that. Just our experience. Also, look into the NET research foundation. They have lots of information and videos on the cancer. It helped us to get educated about it. It's a journey! Hoping for a good outcome for you.

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