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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)

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@nypara66

Correction: I have PV NOT ET, but I am taking the hydroxyurea. The dosage was adjusted to just 3X a week now and for 12 weeks my platelets are stable. I’ve gotten phlebotomies every 8 weeks for the last three times. I’m hoping I can stay at this dosage. My skin spots have slowed down and gum sensitivity also. Good luck!

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Replies to "Correction: I have PV NOT ET, but I am taking the hydroxyurea. The dosage was adjusted..."

Hi @nypara66 Thank you for replying about your experience with hydroxyurea for @blkalydy973. Your skin condition sounds similar to what they are experiencing. It’s really valuable for others to see that dosage adjustments can be helpful in alleviating side effects.