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Very interesting comments!! Am taking Lyrica and its hit or miss if my legs have the stabbing pain or not!! I do have excessive red ankle swelling plus hot feet. I was on gabapentin and maybe did not give it time to work??? I am up to 100 mg on Pregabalin and not feeling wonderful with it
So ya'all (Southern) taking gabapentin not having the stabbing pain?? I am scheduled for mid September to trial the new Saluda Has anyone out there tried it? Also, how many of you have tried the spinal cord stimulators and who found relief with it and who found no relief with it? I, for one, had the Boston Scientific and found NO relief whatsoever! I was reading where Medicare is thinking about not covering them because they feel it is no better than a placebo Would appreciate your comments!! I think its wonderful that we have this website that we can share ideas on how to deal with this life changing problem!!
Replies to "Very interesting comments!! Am taking Lyrica and its hit or miss if my legs have the..."
Do not get a Spinal Stimulator... It is not effective in the least.
@bettyg81pain
I have a spinal stimulator in. When my pain is bad, I have a cold shower, yes in winter too. Then go lie on my back on my bed, turn the stimulator up for a higher pulse. That all works, but without Lyrica and Cannabis oil, the pain comes back sooner. I take 300mg Lyrica in the morning and 12 hours later 300mg again. You have to start on a low dose and work your way up to the dose your dr wants you to be on. In the beginning you do feel sleepy but it eventually goes away.
Good luck yeh all.
@bettyg81pain Hi Betty. I will be meeting a doctor who specializes in cervical spinal cord stimulators. This will be in two months. Will let you know then. I do take opioids, 15mg MS Contin - 2 daily and 5mg oxycodone-2 a day. My dose needs to be increased a little after many years going up and now far down on dose. Meds make burning,pulling neck,shoulder,head pain feel far away. I feel it but no burning and much better. Without it, I could hardly work or function. Pain went from 5th vital sign to 0- I am dependent but not addicted. I never try to feel high or take more meds. I just want to have a life. Told to try weed but not sure what helps.
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I have commented on SCS elsewhere so sorry about any repeat. My Nevro is making a huge difference. At first I was frustrated and so was jumping around to different settings without waiting the suggested 48 hours between setting changes. Huge mistake! You have to let your body get used to the new settings. By working with the Nevro techs and making slow changes, I can now sit with only a tolerable amount of pain for the first time in years. I get up in the morning with enough energy to actually do the regular ADL’s. I really feel a connection b/t my pain level and energy level. I used to feel my pain almost as a weight dragging me down. This is not in my head. I know that when I was hurrying through changes without waiting 48 hours, I went to the highest setting and the SCS seemed to fail. I went back suddenly to the horrible pain I had prior to SCS. I called Nevro and started back with their guidance to the slow changes and it is absolutely helping SO much. It would be a terrible shame if Medicare quit covering it.