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Blood Cancers & Disorders | Last Active: Jun 15 7:51am | Replies (774)
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Nope, she didn’t indicate a follow-up. At first, my GP agreed with me and was going to refer me to Proncess Margaret in Toronto, but he has since changed his discourse and now says that he agrees with her report. In Canada, in a public system, they all have each other’s back. I would need to go completely private, and this is what I’m trying to figure out right now. I’m pretty tolerant of pain, but this is at a whole other level.
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Sorry to hear that nathangolden, sounds like the Aussie system where patients are solely a cog in the huge mechanism for the medical industrial complex to make money from our suffering. I can really empathise with your situation, having been stuck in the Au public health system for some years now. Going private, and paying around $300-$600 per 15 mins consult here is out of my reach, but I know without a doubt that if I had money I would be genuinely helped by the private system. My haematologist was just so outwardly ignorant at the last appointment I’ve ditched him for his colleague - hopefully she will want to help (I’ve gone into stage 3a kidney disease rapidly, with increase in paraproteins of 25% since last visit (7 months ago), as well as feeling bone pain in a lot more areas, and fatigue. I personally think in my case a repeat BMB (last one done Aug 2021) and nephrologist review would be the minimum to do to be responsible towards genuine patient centred care. So that’s what I’m now pushing for - hopefully it happens.
Good luck to you in finding an unbiased professional in the medical field, who is prepared to put your best interests above those of the system and their pockets 🙂