Your description sounds just like mine in the sense that I thought I was "healthy as a horse' until I was diagnosed with symptomatic obstructive HCM in Sept. 2022. I am almost 68. I have now been on Camzyos for almost 4 month. I have always tried go for a 3-4 mile walk every day but found each year my symptoms were getting worse which involved not being able to walk up any incline or stairs, without having to stop and regroup, chest pressure, etc . This would come and go. Echos show that my septum is partially thickened and that partial area doubled in one year but is not thick enough to allow surgery. Once on Camyzyos my LVOT went from 101 and has settled at 24. My EF is still at 74. However, I have never had any other heart issues as in arrhythmia, no other thickening of any of my heart walls, normal chamber pressure in the rest of my heart, etc. And for all of these reasons minus the obvious diagnosis of OCMO my cardiologist strongly felt that I would be a perfect candidate for Camzyos. I have had no real side effects once they adjusted my dose for 5 MG to 2.5 and haven't felt this consistently great in years. If you have the time read through this thread. Very few people have the same heart issues. My cardiologist is at Washington Univ. where they were and still are part of the research for Camzyos and have a division in cardiology just for HCM. I had genetic testing which did not show that I have the gene but the research cardiologists think that it is always genetically linked. There are many gene sequences they can test for HCM and the most common one they used for me did not match but that doesn't mean I don't carry the gene. I am excited for you and it sounds like you are in terrific hands. My feeling is that we are all very lucky that this research is going on now and even if our children have the gene and display symptoms for HCM they will be treated earlier and with more knowledge.

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