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DiscussionHCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Aug 26 9:56am | Replies (870)Comment receiving replies
Replies to "Your description sounds just like mine in the sense that I thought I was "healthy as..."
This is what is so special about Mayo Connect @nbs! Your willingness to share with @newtosohcm your information and helping who knows else that may be reading! A lot of us have such similar stories...I too was super active and healthy. Hiking every week, walking 6 miles each day, ballroom/swing dance lessons for three hours...and then I couldn't. Thank goodness for being in good health aside from HOCM. I am 65, diagnosed at 61. I thought I would never be able to do what I loved, but a septal myectomy gave me back my life. I am probably not every going to be like I was prior to HOCM, but I am so much better, and blessed to be living at all. Thank you for sharing. I know each Camzyos story is different, and yours is positive and I appreciate how willing you are to share with others just beginning Camzyos. Again, that is what makes this support group so special. No where else in the world will we find a place like Connect to do just that...connect!! Thank you for sharing 🙂
Thank you so much for sharing your detailed description of the condition we share. It really helps to know others on this path. I do hope that backpacking (even a little!) with my son is still in my future!! Take care. Glad you have a good medical spot in Washington,