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@joansmurphy

As an ICU nurse for 40 years, I am ashamed that you are receiving such poor care. I found in a complicated situation, it’s best to see a rheumatologist. They take a lot of time listening. Initial appointments are 60-90 minutes long. They start at square 1. You don’t need to bring records as they do their own testing.

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Replies to "As an ICU nurse for 40 years, I am ashamed that you are receiving such poor..."

Hi @joansmurphy. I did not see your reply until after mine. Want to say thank you so much for sharing your ICU nurse experience which elicits the medical help and also reminds all of the immense caring most healthcare professionals have as I personally witnessed running multi specialty medical practices over 20 yrs. This is definitely the most trying time in healthcare and hopeful it will quickly produce an efficient model for all. 🌈

Couldn't agree more. Mine asked me what I thought we should do next (One year into long Covid) I suggested maybe its time to look at the critical organs that are known to be negatively affected by Covid - I told him that since I had been living with stroke - heart attack symptoms for roughly a year - maybe we should take a closer look. He agreed and ordered a CT Scan of my lungs and an echocardiogram of my heart before I left the introductory session. His comment was those organs can kill you quickly so lets not waste time on checking them out. The only other diagnosis effort prior to that was pysch test to see why I was screaming at my doctors and to check my inter ear for dizziness. Good news I have a great inter ear and neuro-pysc came back as average - who knows how smart I was before brain fog and Covid.

Saw a rheumatologist with no luck.