Yes; it’s not something that would happen with a different type of cancer..I don’t mean to intentionally be contentious but I sometimes imagine if it was suspected breast cancer, I doubt it would be left for months before scheduling a mammogram..there’s just a different approach to people with MGUS/MGRS/SMM where in my own case I definitely feel like my current haematologist looks at me with only partly hidden festering distain for the inconvenience I am to his otherwise undisrupted day, because in his eyes I’m making a big deal out of nothing - when in reality, the long list of complications and ancillary health problems that stem from a monoclonal gammopathy is so much greater than many other conditions (without advancing to overt cancer) in some instances.
From what I’ve experienced, it seems to be less important because it is seen to be an ‘older persons disease’, somehow rendering it - along with older people - as of less importance (something I find personally offensive, because everyone is valuable no matter their age or anything else about them).
I am happy to be seen by a different haematologist in October - the appointment was confirmed today - and so hopefully she will want to do something like kidney or BM biopsies soon afterwards. Hopefully…🙂