@hello1234
I haven't been reading the Mayo Clinic Connect posts lately but am glad I looked at it tonight. I'm so sorry you're having to go thru this. Even though your creatinine is a little elevated it's still not high, still in the "normal range". My husband's creatinine baseline is higher than 1.1 and his is considered good because, as the neph explains it, you really need to divide by 2 since there is only 1 transplanted kidney. I'm not sure I'm doing a good job explaining but the bottom line is your creatinine is not alarmingly high but of course the sooner you get this resolved the better. With the treatment Mayo is planning I hope that it will take care of the embolism in the fistula. Let's be optimistic and hope that your beautiful transplanted kidney can be saved and last for as long as your on this earth!! I have only heard of embolism in the fistula of the arm as in dialysis.
Because there are risks in doing an ultrasound aided kidney biopsy, I am struggling to decide whether my hubby should do the 2nd year kidney biopsy. This would be his 3rd one and I'm debating whether it's a good idea to poke his transplanted kidney that many times! His transplant nephrologist seems to think it's a good idea because of early detection or rejection can be seen and treated more easily/successfully. He does recommend it for the 2nd year but it is optional and we can decide. After hearing what has happened to you, I'm not so sure this is a good idea anymore!
Question: Did your team know about the complication after your 4 month post transplant biopsy, and they expected the fistula to resolve itself after 3 years? So it took a while for your creatinine to elevate?