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Transverse myelitis (TM) Or Spinal-cord virus

Infectious Diseases | Last Active: Jan 21, 2024 | Replies (18)

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I have transverse myelitis. Had 6 weeks of infusions, 3x a day. Didn't do anything for me. 2 months later I finally got an appointment with a neurologist. He did some office tests and said I had neuropathy. Set me up for 12 treatments, at 2x a week for 6 weeks, with the sanexa Neutrogena therapy. I just finished 5 treatments. No change yet. Is this something I should be doing for myelitis?

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Replies to "I have transverse myelitis. Had 6 weeks of infusions, 3x a day. Didn't do anything for..."

I'm sorry, it's neurogen sanexa therapy, not neutrogena.

Does anyone else struggle with lasting effects from TM (pain, numbness, spasms, legs giving out, etc). Even after recovery?

I (22 F) was diagnosed with TM back in March 2019.
I woke up after a family trip and made my sister and I breakfast, that’s when I noticed the pins and needle feeling in my legs. I brushed it off to just sleeping wrong, but was proven wrong not even 30 minutes later when I became paralyzed from the chest line down.

It took me almost 7 months to be able to walk by myself without guidance/support.
Lately, I’ve been struggling with leftover symptoms.
My legs give out randomly, knees lock up, spasms and I have a lot of pain that keeps me from getting out of bed some days.
I had an mri and blood work done recently but there is nothing there. (Except that I’m malnourished, and vitamin D deficient)
And I was wondering if anyone else deals/has dealt with the same?

I developed myelitis from a virus over a year and a half ago and am still having symptoms that can be debilitating