Transverse myelitis (TM) Or Spinal-cord virus

Posted by ajabidi @ajabidi, Nov 27, 2020

Transverse myelitis (TM) We were told it is Spinal-cord virus, i’m trying to see if there is anything I can do to help my mum she’s been disabled for about 18 years due to spinal-cord disconnection and I have seen a video on YouTube that someone can someone help that had a spinal cord injury she can stand up walk with a walker but she can’t lift her legs or stand on her own without a walker and a little help if there is anythingOr anyone knows that there is help or medication or surgery please let me know thank you

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Hi @ajabidi, Viral, bacterial and fungal infections affecting the spinal cord may cause transverse myelitis. According to Mayo Clinic, the inflammatory disorder appears after recovery from the infection in most cases. Read more here: https://www.mayoclinic.org/diseases-conditions/transverse-myelitis/symptoms-causes/syc-20354726

Was is confirmed that your mum had a virus? What treatment did she get?

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @ajabidi, Viral, bacterial and fungal infections affecting the spinal cord may cause transverse myelitis. According to Mayo Clinic, the inflammatory disorder appears after recovery from the infection in most cases. Read more here: https://www.mayoclinic.org/diseases-conditions/transverse-myelitis/symptoms-causes/syc-20354726

Was is confirmed that your mum had a virus? What treatment did she get?

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She was admitted to the hospital due to some pain in her left leg she went in walking but after they gave her Cortizone shot she lost all her sinces from the waste down and after that she was giving a lot of medicines and some physical therapy now she takes lyrica and baclofen

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Also she was in the Beginningshe one cortisone polls

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my wife has the same problem any new treatments that you know of? does the Mayo clinic have any answers or solutions?

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Profile picture for ricof66 @ricof66

my wife has the same problem any new treatments that you know of? does the Mayo clinic have any answers or solutions?

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Hello @ricof66 and welcome to Mayo Clinic Connect. I am sorry to hear that your wife is going through this. I wanted to share some information you may find helpful from Mayo Clinic.

- Transverse Myelitis: Diagnosis and Treatment: https://www.mayoclinic.org/diseases-conditions/transverse-myelitis/diagnosis-treatment/drc-20354730

Have any of these treatment options been offered to your wife where you are seeking care?

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I have transverse myelitis. Had 6 weeks of infusions, 3x a day. Didn't do anything for me. 2 months later I finally got an appointment with a neurologist. He did some office tests and said I had neuropathy. Set me up for 12 treatments, at 2x a week for 6 weeks, with the sanexa Neutrogena therapy. I just finished 5 treatments. No change yet. Is this something I should be doing for myelitis?

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Profile picture for barnlady @barnlady

I have transverse myelitis. Had 6 weeks of infusions, 3x a day. Didn't do anything for me. 2 months later I finally got an appointment with a neurologist. He did some office tests and said I had neuropathy. Set me up for 12 treatments, at 2x a week for 6 weeks, with the sanexa Neutrogena therapy. I just finished 5 treatments. No change yet. Is this something I should be doing for myelitis?

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I'm sorry, it's neurogen sanexa therapy, not neutrogena.

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Did your mum do infusions or plasma therapy or sanexas neogen therapy. Infusions did nothing for me. My neurologist has set me up with sanexas neogen therapy. 12 treatments, 2x a week for 6 weeks. I just finished the 5th treatment. No change. He diagnosed me with neuropathy and said these treatments will fix the spine problem. I'm not sure if this is what I should be doing

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Profile picture for barnlady @barnlady

I have transverse myelitis. Had 6 weeks of infusions, 3x a day. Didn't do anything for me. 2 months later I finally got an appointment with a neurologist. He did some office tests and said I had neuropathy. Set me up for 12 treatments, at 2x a week for 6 weeks, with the sanexa Neutrogena therapy. I just finished 5 treatments. No change yet. Is this something I should be doing for myelitis?

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Does anyone else struggle with lasting effects from TM (pain, numbness, spasms, legs giving out, etc). Even after recovery?

I (22 F) was diagnosed with TM back in March 2019.
I woke up after a family trip and made my sister and I breakfast, that’s when I noticed the pins and needle feeling in my legs. I brushed it off to just sleeping wrong, but was proven wrong not even 30 minutes later when I became paralyzed from the chest line down.

It took me almost 7 months to be able to walk by myself without guidance/support.
Lately, I’ve been struggling with leftover symptoms.
My legs give out randomly, knees lock up, spasms and I have a lot of pain that keeps me from getting out of bed some days.
I had an mri and blood work done recently but there is nothing there. (Except that I’m malnourished, and vitamin D deficient)
And I was wondering if anyone else deals/has dealt with the same?

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Profile picture for kat101716 @kat101716

Does anyone else struggle with lasting effects from TM (pain, numbness, spasms, legs giving out, etc). Even after recovery?

I (22 F) was diagnosed with TM back in March 2019.
I woke up after a family trip and made my sister and I breakfast, that’s when I noticed the pins and needle feeling in my legs. I brushed it off to just sleeping wrong, but was proven wrong not even 30 minutes later when I became paralyzed from the chest line down.

It took me almost 7 months to be able to walk by myself without guidance/support.
Lately, I’ve been struggling with leftover symptoms.
My legs give out randomly, knees lock up, spasms and I have a lot of pain that keeps me from getting out of bed some days.
I had an mri and blood work done recently but there is nothing there. (Except that I’m malnourished, and vitamin D deficient)
And I was wondering if anyone else deals/has dealt with the same?

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I (73 M) have been dealing with legs giving out, knee lock, and muscle (spastic) spasms(right leg, mainly from lower-mid-thigh). My local neurologist suggested a muscle relaxer to alleviate the above symptoms. I am in my third week of Tizanidine(4mg tablets) up to 3 times a day. I cut it down to twice a day - early-mid morning and early evening(when the spasms seem to surface). On the plus side, my spasms have decreased and my legs have not given out and no knee lock. The down side is the major side effect of drowsiness and dry mouth, especially during the first hour. I am going to cut back to once daily in another week only to minimize the side effects. Hope this helps.

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