@Forlom Theressa,
Thank you kindly for being there for me. I'm trying so hard, I really am, and I clicked on the link to try and find an MD familiar with LT Covid. Every link I clicked seemed to want an email address or google sign-in to obtain which I don't have or wish to create.
I have always been so independent and strong, but the tell us if you need help, ask. . . so here it goes. Please our Dearest Lord, hear my prayer. I live in Wisconsin on the far north side near Illinois border. If anyone has a great MD they are working with successfully, or know of a clinic I can go to, PLEASE help in providing me info.
I'm so weak at this point and in so much pain, I no longer can find the strength and mind set compared to where I was 3 yrs ago when this all began.
This is what is so frustrating, all the doctors see me in this condition and don't care. What happened to their ethics and oath?
When I reached out to my last doctor on how much worse I am, his nurse messaged me, not even called, and told me if I feel that ill to go to the ER. Problem being, been there, done that and they go by previous notes and his records and just dismiss me. Especially being older at 68 yrs.
Summerof42:
Praying for you and I am so sorry. I hope these suggestions help in some small way:
1) The medical field is different since Covid. Doctors no longer can spend a lot of time with you like before and there is a nursing shortage. My PCP of 32 years retired and he was wonderful. You may try a few more until you find someone that will listen.
2) LONG COVID IS REAL!!! PCP's are not that familiar with long Covid NOR the symptoms with it because Covid has not been around that long. A Long Covid Recovery Clinic is your best bet. (Forgive me but I can't remember if you have been to one)
3) I went to 5 doctors about some issues with the mucousy saliva in my mouth after Covid and none of them could diagnose me. Why? They are not familiar with a lot of the Long Covid issues and are still learning. The Long Covid Recovery Clinic gave me answers to that and I am grateful.
4) I have had to go to Urgent Care recently for pneumonia, asthmatic bronchitis & sinus infection. I got great care and they were very proactive. It's harder to get into a PCP's office, get a lung x-ray since Covid than just simply going to an urgent care.
5) My body changed greatly after Covid and I have long Covid that has affected my joints, mouth, reflux, upper respiratory, immune system & energy. I have accepted that. I do not have as hard of issues as you do. I am reading everything I can get my hands on and listening to others on here to get a "fresher" outlook on Long Covid and what helps. Personally, I am going to go to an integrative medicine doctor that thinks "outside the box" on health issues. I think we need both with Long Covid.
6) Sometimes when you have a lot of medical issues, you have to unpeel each layer like an onion....one layer at a time. Get the worst thing treated first and then go to the next.
I believe with all of my heart, there is someone that can help you and I am praying for that. I care! Hugs & Prayers....