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Please allow me to {{{scream}}} and yes, I'm crying
Post-COVID Recovery & COVID-19 | Last Active: Dec 8, 2023 | Replies (23)Comment receiving replies
I see you.
I feel your frustration.
This is not medical advice.
You do need a PCP who cares about you and sees you as a human being.
My PCP left the practice. I tried 4 different PCP’s over the course of a few months. None of them understood the 10 page report that the Mayo long covid clinic prepared. Thus, they couldn’t help me manage all of the specialists I needed to see.
Unfortunately, in America- our system is designed to maximize the profit of our illnesses. It is not designed to figure out that our brain and our nerves maybe impacting our gastrointestinal processes. Only our PCP, who has 15 minutes with us, looks at us a whole human being.
In the usa, I think that people with chronic illnesses, like “persistent sars2”, me/cf, etc., need the best PCP money can buy. I decided to pay for concierge healthcare. Patients pay a fee to have more time with a PCP, access to testing, responses to my chart messages..
I know that most people can’t afford to pay a fee to have access to a doctor. Our healthcare plans should provide healthcare- but they don’t, and definitely not for chronic covid.
My advice:
1)Ask the doctor to remove all of the notes, as they are sexist and shaming.
2)Get a PCP who knows about chronic covid , or at least me/cf or MS
3)Don’t give up. It’s YOUR life- fight for it.
Replies to "I see you. I feel your frustration. This is not medical advice. You do need a..."
What dr is helping you? Name number please
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1. I tried to get the records corrected and they refuse.
2. I tried to get a new PCP with no luck. As a matter of fact, when I saw the new one mentioned above, who was a really young female PCP, she pretty much brushed me off and said it's out of league. I still stuck with her because I NEED a doctor! However, in the interim I went to a new doctor, DO for another opinion which my neighbor said is really good, but then the new PCP found out and her nurse called me and said, she was dropping because I went to see another MD.
3. There's no hope because of what my records now show, and no doctor will accept me.
4. Heading back to bed. . . can't stop crying. I'm trying hard not to, because I don't want to gt dehydrated and 90lbs. I pray to our Dear Lord to help and give me strength, but how much more can I tolerate and go on?
Hugs to all