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Kidney Biopsy Complication

Transplants | Last Active: Aug 21, 2023 | Replies (21)

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@hello1234

Hi @gingerw 😊
Thanks so much for joining in! Yes, there is always a long laundry list of possible adverse outcomes to every drug and procedure, but I don't expect any of the bad ones to happen to me. (Especially a procedure that is done so often at a transplant center).
I am not sure what chemical is used to clot off the fistula, but I have been warned that I may lose that portion of the kidney.
My fear is that the longevity of my beautiful new kidney definitely appears to be in jeopardy.
My baseline creatinine was consistently. 9 and is now 1.1.
My 24 hour creatinine clearance was 70 and is now 50.
Sadly, my kidney function is definitely going the wrong direction.
I was hoping this kidney may have taken me to the end, but now I don't think so.
I feel badly that I didn't follow my instinct and say no to the protocol biopsies since the kidney was functioning beautifully.
I like to use biopsies when something actually needs to be diagnosed but my transplant coordinator insisted that I proceed, so I felt I was at risk of being non-compliant. I definitely didn't want to do anything that risked the kidney. And here I am. Scared.

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Replies to "Hi @gingerw 😊 Thanks so much for joining in! Yes, there is always a long laundry..."

Oh, gosh, I hope you don't lose that part of your kidney or your kidney! So scary to be in limbo like this. No matter the when of the procedure, it can't come soon enough, right? Here for you, however I can help.

I have a surgery-created fistula on my right forearm, for hemodialysis. Unfortunately, nine months after the procedure, it "shut down" without notice about a year ago. Fortunately I am on peritoneal dialysis. If needed, they will place a new one further up my arm.

Your transplant coordinator could not have foreseen this complication. Hopefully they have been advised of the situation and will reach out to you.
Ginger