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Interstitial pulmonary fibrosis
Lung Health | Last Active: Sep 2 9:03am | Replies (58)Comment receiving replies
I took steroids for a few months shortly after I was diagnosed in 2020. Then Cellcept which I am slowly being weaned from. My pulmonologist specializes in ILD so I am confident he knows what he is doing. I have now been on Cellcept for over two years with no noticeable side effects. I feel fabulous and feel lucky. I have PFTs every three months and all are normal. I will have another lung scan next month. Have not had one for more than two years. Fingers crossed.
Replies to "I took steroids for a few months shortly after I was diagnosed in 2020. Then Cellcept..."
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You have more than my fingers crossed…😂
If you think of it next visit, could you ask him if he thought it would work for ipf, early diagnosis according to doc.
My husband keeps looking for something besides Ofev…he’s doing well on it, but thinks he can find something else…he’s found a couple experiments that work on mice cells in a Petri dish, but no trials, etc.
Would you share what state you are in? And how did you find the specialist for ild? His GP recommended one about 40 minutes away, but he won’t treat his ipf, because he doesn’t have certain issues…