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Interstitial pulmonary fibrosis

Lung Health | Last Active: Nov 12, 2023 | Replies (48)
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@maryecox

I did not have a transplant. Cellcept is also a steroid reducing drug and has been good for my ILD. I am doing well. I exercise every day and that may be the reason my disease has not progressed. Am almost 79. We do not know what caused it but we caught it early. I hope all goes well with your husband. 😊❤️

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Replies to "I did not have a transplant. Cellcept is also a steroid reducing drug and has been..."
ch47 | @ch47 | Aug 19, 2023

Are you also taking steroids? What info did your doctor give you about taking cellcept instead of one of the two approved meds IPF? Can you recommend some sites to check out? It would really be wonderful to have more information…
I know that IPF is a type of ILD; I wonder if that is why the difference in Med diagnosis.
I am so happy for you that things are going so well!!!
My husband exercises every day, walking, golf, etc. He is not taking any steroids. I’m the one that has backed out of most stuff because of body/spine etc issues. I cross my fingers that we can do enough stuff to get back on track!
Wonderful blessings for you!!!
How often do you have pulmonary function tests, and ct scans to check? 😘

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