I tried Gabapentin for a couple of months. I didn't work for me, and it turned me into a zombie and made so many mistakes at work. I've tried the usual, Mirapex, Requip; they don't work for me either. I was put on a Fentanyl Patch for pain, and that seemed to take care of my restless leg syndrome. I've been on the same dosage for years, but after my seventh spine surgery in January, I decided to see if I could come off the Fentanyl and have lowered my dosage from 100 down to 75 mcg/hr and it still works for RLS. It might be worth considering.
I tried Gabapentin for a couple of months. I didn't work for me, and it turned me into a zombie and made so many mistakes at work. I've tried the usual, Mirapex, Requip; they don't work for me either. I was put on a Fentanyl Patch for pain, and that seemed to take care of my restless leg syndrome. I've been on the same dosage for years, but after my seventh spine surgery in January, I decided to see if I could come off the Fentanyl and have lowered my dosage from 100 down to 75 mcg/hr and it still works for RLS. It might be worth considering.
It's actually called Periodic Limb Movement. I have RLS but my daughter has Periodic Limb Movement. When I had my sleep study done, my legs moved 7 times per minute all night long! Symptoms have been found to be worse with a low ferritin leveI. I take B12 but have also been on Mirapex (Pramipexole) since 1991 with great relief. I had to go from .5 to 1.0 mg after being on it about 5 years, but haven't had to increase it since. I only take it at bedtime or when taking a long flight. I also find warm baths with a good amount of epsom salts helpful.
I would like to thank each of you who replied to my post. I have ready them all carefully and will go back and make detailed notes as I have time. They are all very interesting and it is reassuring to know I am not alone. You feel that way when you seem to be suffering from something that is a little out of the norm. People tend to consider you a hypochondriac sometimes if you don't have a "normal" disease." I was lucky and got an appt today with a nerologist for the first time. My appt had been for NOV but there was a cancellation and my faithful husband/caregiver had been checking everyday so what a blessing. God bless you all with a beautiful day.
I would like to thank each of you who replied to my post. I have ready them all carefully and will go back and make detailed notes as I have time. They are all very interesting and it is reassuring to know I am not alone. You feel that way when you seem to be suffering from something that is a little out of the norm. People tend to consider you a hypochondriac sometimes if you don't have a "normal" disease." I was lucky and got an appt today with a nerologist for the first time. My appt had been for NOV but there was a cancellation and my faithful husband/caregiver had been checking everyday so what a blessing. God bless you all with a beautiful day.
Many,perhaps most ,of our ills have no known cure,only treatment to alleviate at best!
Read the New York Times Week in Review article by a physician on "Blood Pressure. as under "political" control. Causes are seen as due to allostasis,rather than homeostasis. STRESS is the key word!
I have had Idiopathic Peripheral Neuropathy for about 10 years (am currently 70). It started shortly after I suffered a neck injury and subsequent 3 level cervical fusion. It started with unbearable burning/tingling in both feet progressing to severe pain/numbness in both feet. I also get severe shooting pains emanating from both feet. I currently take Lyrica (300 mg 3-4 times daily (a lot), and Cymbalta 25 mg daily as well as Tylenol and Advil as needed. I also took Morphine 25mg daily and Tramadol (can't remember dose) for 8 years until going thru Mayo's Pain Rehab program a year ago. They got me off the Opioids and taught me alternative ways to manage/cope with my pain. Coping with pain sounds easy until you are the one having it. I do pretty well with that, but my pain limits my activity level a lot. My primary physician has recommended medical marijuana and I have been referred to a center. Have ANY of you tried Marijuana for your pain? If so, I would love to get your opinions on it.
Dr. Just gave me samples of Lyrica but no I have not tried medical mj. t is more expensive than the meds. and I am very low income but a whole $17 over for Medicaid. Insurance would cost me 973 per month so I pay cash and just waiting for or SSDI or medicare which I would have in1 year
Asked my dr. about medidcal marijuana and he said... "try Arnica - it's cheaper." so I did and honestly, I didn't try it for long enuf to get a dependable result but it didn't seem to make any difference --- so, I'm sticking with massaging my feet and ankles nightly with a good foot cream - it helps but it's topical so the underlying cause/help/cure is still an open question. I'm fearful of taking the standard meds as the TV ads for those products indicate they could do some pretty scary stuff to overall health. Kind of feel caught in the middle.
Drug companies must, under law, divulge ALL known side effects that MAY be found if taking the drug. If you find, while taking any drug, that a side effect becomes worse than your pain, then quit. Only you can decide. I take way over the maximum recommended dose of Lyrica with minimal side effects. My Dr. and I have determined that the pain relief I get from taking it out-weigh the side effects I get. Please don't let TV adds determine your own medications. After all, we have now found out that Aspirin can harm some people and it's been around for decades, and yet we still take it.
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Thank you for the link. It's strange, but the RLS moved from my legs into my arms. So I guess you could say I have Restless Arm Syndrome.
U R A RESTTLESS PERSON!
It's actually called Periodic Limb Movement. I have RLS but my daughter has Periodic Limb Movement. When I had my sleep study done, my legs moved 7 times per minute all night long! Symptoms have been found to be worse with a low ferritin leveI. I take B12 but have also been on Mirapex (Pramipexole) since 1991 with great relief. I had to go from .5 to 1.0 mg after being on it about 5 years, but haven't had to increase it since. I only take it at bedtime or when taking a long flight. I also find warm baths with a good amount of epsom salts helpful.
I would like to thank each of you who replied to my post. I have ready them all carefully and will go back and make detailed notes as I have time. They are all very interesting and it is reassuring to know I am not alone. You feel that way when you seem to be suffering from something that is a little out of the norm. People tend to consider you a hypochondriac sometimes if you don't have a "normal" disease." I was lucky and got an appt today with a nerologist for the first time. My appt had been for NOV but there was a cancellation and my faithful husband/caregiver had been checking everyday so what a blessing. God bless you all with a beautiful day.
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3 ReactionsSo glad you got an earlier appointment @emilyanne. I hope you'll have a minute to let us know what you find out. All the best.
Many,perhaps most ,of our ills have no known cure,only treatment to alleviate at best!
Read the New York Times Week in Review article by a physician on "Blood Pressure. as under "political" control. Causes are seen as due to allostasis,rather than homeostasis. STRESS is the key word!
I have had Idiopathic Peripheral Neuropathy for about 10 years (am currently 70). It started shortly after I suffered a neck injury and subsequent 3 level cervical fusion. It started with unbearable burning/tingling in both feet progressing to severe pain/numbness in both feet. I also get severe shooting pains emanating from both feet. I currently take Lyrica (300 mg 3-4 times daily (a lot), and Cymbalta 25 mg daily as well as Tylenol and Advil as needed. I also took Morphine 25mg daily and Tramadol (can't remember dose) for 8 years until going thru Mayo's Pain Rehab program a year ago. They got me off the Opioids and taught me alternative ways to manage/cope with my pain. Coping with pain sounds easy until you are the one having it. I do pretty well with that, but my pain limits my activity level a lot. My primary physician has recommended medical marijuana and I have been referred to a center. Have ANY of you tried Marijuana for your pain? If so, I would love to get your opinions on it.
Dr. Just gave me samples of Lyrica but no I have not tried medical mj. t is more expensive than the meds. and I am very low income but a whole $17 over for Medicaid. Insurance would cost me 973 per month so I pay cash and just waiting for or SSDI or medicare which I would have in1 year
Asked my dr. about medidcal marijuana and he said... "try Arnica - it's cheaper." so I did and honestly, I didn't try it for long enuf to get a dependable result but it didn't seem to make any difference --- so, I'm sticking with massaging my feet and ankles nightly with a good foot cream - it helps but it's topical so the underlying cause/help/cure is still an open question. I'm fearful of taking the standard meds as the TV ads for those products indicate they could do some pretty scary stuff to overall health. Kind of feel caught in the middle.
Drug companies must, under law, divulge ALL known side effects that MAY be found if taking the drug. If you find, while taking any drug, that a side effect becomes worse than your pain, then quit. Only you can decide. I take way over the maximum recommended dose of Lyrica with minimal side effects. My Dr. and I have determined that the pain relief I get from taking it out-weigh the side effects I get. Please don't let TV adds determine your own medications. After all, we have now found out that Aspirin can harm some people and it's been around for decades, and yet we still take it.
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