Did you ever take oral iron supplements? Or were your numbers so bad they went right to the infusion? In my case I took supplements and there was no improvement at all, almost like I wasn’t absorbing iron, so eventually I had infusions. They will always look for a source of bleeding first, usually before considering anything else. I’m curious, did you start to see your levels fall again approximately 3 months after your infusion?

@ellie0989 I have the same thing going on, I went to the gastro and was told everything looked good , I went to a rheumatologist who ran tests to check for autoimmune conditions and everything was good . After all of this my doctor tells me sometimes they have no definitive answer. I go every 4 months to get infusions and I've been doing them for 5 years now . Good luck 🩷 I hope you get a answer, definitely would like to hear back if you find out anything else.