Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
Hi EMILY ANNE...I noticed in your note something about restless leg<br>syndrome and lately I have not seen anywhere a tip that I found in our<br>local newspaper years ago in a column written by an MD and seems to work for<br>some. And it did/does for me. When I tried it, it seemed to work for me<br>but I was convinced the results were psychosomatic. The tip is to put a bar<br>of soap under your sheet at night. Simple enuf and yet questionable. After<br>successfully using this tip for years (don't argue with success) , one night<br>my legs were all over the place. I figured at first that it truly was<br>psychosomatic. But I looked for the bar of soap, I couldn't find it at<br>first. It had slid off the mattress and was almost under the mattress where<br>the sheet got tucked under the mattress! I put it back in place and no<br>problems since. And that also was years ago! I do remember though that<br>there is one brand of soap that others say doesn't seem to work...and if I<br>remember correctly it was Dial. And the bar doesn't have to be under your<br>legs...just under the sheet somewhere on the side!!!!!! But if one brand<br>doesn't work, try one other. And I've had it under cotton as well as<br>flannel sheets. Many wrote to that column to say it worked for them. The<br>column Dr. admitted many times, no one knows how/why it works. @gailfaith<br><br>
Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.
How long have you been dealing with peripheral neuropathy?
There is actually an official diagnosis now for chemo induced peripheral neuropathy. Is yours from chemo or something else? There are prescription meds that work for some & also have some unpleasant side effects for some. My husband takes Gabapentin and has no problem with it. I tried it, and it did help some, but I was constantly dizzy. It was a major problem if I got up in the middle of the night. It did not improve enough to put up with the side effect.
What kinds of issues are you dealing with? I understand it can be very different from one person to the next. Whatever, it is uncomfortable, can certainly cause us to be unsure on our feet and be very frustrating. I hope you find something that helps. I am 3 years out from taking Taxotere, which is what caused mine. It is better but still a pretty major issue. I have it in both feet and both hands.
I have taken the Meds mention here. Those Meds over time , stress the liver and no longer helped. My liver test where not good, so now I take very little Meds and avoid damaging my liver miore with long term medicine useage. As I age , my body canno longer handle those strong Meds. Healthy eating and moving around gently helps. At night , I start mindfulness and drink tea and massage. I feel less stress, more in control and kettle to none pain med. if needed. And "no" , I am not a old person, just smart about my body's needs.
I have taken the Meds mention here. Those Meds over time , stress the liver and no longer helped. My liver test where not good, so now I take very little Meds and avoid damaging my liver miore with long term medicine useage. As I age , my body canno longer handle those strong Meds. Healthy eating and moving around gently helps. At night , I start mindfulness and drink tea and massage. I feel less stress, more in control and kettle to none pain med. if needed. And "no" , I am not a old person, just smart about my body's needs.
Ask your *Nephrologist what Meds U CAN TAKE. A NO may mean that the kidney<br>does NOT clear them well and so they will build up in the blood and maybe<br>elsewhere.*<br><br>
I tried Gabapentin for a couple of months. I didn't work for me, and it turned me into a zombie and made so many mistakes at work. I've tried the usual, Mirapex, Requip; they don't work for me either. I was put on a Fentanyl Patch for pain, and that seemed to take care of my restless leg syndrome. I've been on the same dosage for years, but after my seventh spine surgery in January, I decided to see if I could come off the Fentanyl and have lowered my dosage from 100 down to 75 mcg/hr and it still works for RLS. It might be worth considering.
I tried Gabapentin for a couple of months. I didn't work for me, and it turned me into a zombie and made so many mistakes at work. I've tried the usual, Mirapex, Requip; they don't work for me either. I was put on a Fentanyl Patch for pain, and that seemed to take care of my restless leg syndrome. I've been on the same dosage for years, but after my seventh spine surgery in January, I decided to see if I could come off the Fentanyl and have lowered my dosage from 100 down to 75 mcg/hr and it still works for RLS. It might be worth considering.
Y DO I GET THE THOUGHT THAT U DID NOTt CONSULT MAYHOCLINIC.ORG?.
just rechecked, under "Restlss Legs Syndrome" and saw several drugs to try. However, U MUST look at side affects of each:Ambien might be a problem after 2-4 weeks and others too might be a problem. Check with your Neurologist!!
I tried Gabapentin for a couple of months. I didn't work for me, and it turned me into a zombie and made so many mistakes at work. I've tried the usual, Mirapex, Requip; they don't work for me either. I was put on a Fentanyl Patch for pain, and that seemed to take care of my restless leg syndrome. I've been on the same dosage for years, but after my seventh spine surgery in January, I decided to see if I could come off the Fentanyl and have lowered my dosage from 100 down to 75 mcg/hr and it still works for RLS. It might be worth considering.
I have taken the Meds mention here. Those Meds over time , stress the liver and no longer helped. My liver test where not good, so now I take very little Meds and avoid damaging my liver miore with long term medicine useage. As I age , my body canno longer handle those strong Meds. Healthy eating and moving around gently helps. At night , I start mindfulness and drink tea and massage. I feel less stress, more in control and kettle to none pain med. if needed. And "no" , I am not a old person, just smart about my body's needs.
Timerdude when my meds caused my liver to have a fourth of liver damage,<br>my sister in law gave me an Atkins diet book. I read an put myself on<br>the diet. I started on the first level. I was really dedicated to<br>it because of what I had studied. When I went back to the Dr. and had<br>the live test again it had healed it self. He asked what I had done<br>differently and I showed him what I was eating and how I cut all<br>sugar out of my diet. I've never been a consumer of liquor. He told<br>me to live on this diet as if I were a diabetic. I've been on it for 12<br>years. I do have cheat day's!!. If you have ever had gout you can't do<br>the diet. A lot of people stop the diet because they say it makes them<br>feel bad. They feel bad because the body detoxifies.<br>
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try *Gabapentin,probably at 300 mg.,twice or t hrice a day!*<br><br>*Another drug is an antidepressant called CYMBALTA.*<br>
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2 ReactionsHi EMILY ANNE...I noticed in your note something about restless leg<br>syndrome and lately I have not seen anywhere a tip that I found in our<br>local newspaper years ago in a column written by an MD and seems to work for<br>some. And it did/does for me. When I tried it, it seemed to work for me<br>but I was convinced the results were psychosomatic. The tip is to put a bar<br>of soap under your sheet at night. Simple enuf and yet questionable. After<br>successfully using this tip for years (don't argue with success) , one night<br>my legs were all over the place. I figured at first that it truly was<br>psychosomatic. But I looked for the bar of soap, I couldn't find it at<br>first. It had slid off the mattress and was almost under the mattress where<br>the sheet got tucked under the mattress! I put it back in place and no<br>problems since. And that also was years ago! I do remember though that<br>there is one brand of soap that others say doesn't seem to work...and if I<br>remember correctly it was Dial. And the bar doesn't have to be under your<br>legs...just under the sheet somewhere on the side!!!!!! But if one brand<br>doesn't work, try one other. And I've had it under cotton as well as<br>flannel sheets. Many wrote to that column to say it worked for them. The<br>column Dr. admitted many times, no one knows how/why it works. @gailfaith<br><br>
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2 ReactionsI USUALLY GO TO THE MAYO CLINIC WEBSITE FIRST. U WILL FIND RESTLESS LEGS COVERED THERE.
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1 ReactionGABAPENTIN AND CYMABALTA HAVE BEEN RECOMMENDED BY THE MAYOCLINIC AND OTHERS.
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1 ReactionI have taken the Meds mention here. Those Meds over time , stress the liver and no longer helped. My liver test where not good, so now I take very little Meds and avoid damaging my liver miore with long term medicine useage. As I age , my body canno longer handle those strong Meds. Healthy eating and moving around gently helps. At night , I start mindfulness and drink tea and massage. I feel less stress, more in control and kettle to none pain med. if needed. And "no" , I am not a old person, just smart about my body's needs.
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Helpful -
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1 ReactionAsk your *Nephrologist what Meds U CAN TAKE. A NO may mean that the kidney<br>does NOT clear them well and so they will build up in the blood and maybe<br>elsewhere.*<br><br>
-
Like -
Helpful -
Hug
1 ReactionI tried Gabapentin for a couple of months. I didn't work for me, and it turned me into a zombie and made so many mistakes at work. I've tried the usual, Mirapex, Requip; they don't work for me either. I was put on a Fentanyl Patch for pain, and that seemed to take care of my restless leg syndrome. I've been on the same dosage for years, but after my seventh spine surgery in January, I decided to see if I could come off the Fentanyl and have lowered my dosage from 100 down to 75 mcg/hr and it still works for RLS. It might be worth considering.
Y DO I GET THE THOUGHT THAT U DID NOTt CONSULT MAYHOCLINIC.ORG?.
just rechecked, under "Restlss Legs Syndrome" and saw several drugs to try. However, U MUST look at side affects of each:Ambien might be a problem after 2-4 weeks and others too might be a problem. Check with your Neurologist!!
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Hug
1 ReactionHere is the information from Mayo Clinic on Restless Legs Syndrome that @ujeenjack referred to above http://www.mayoclinic.org/diseases-conditions/restless-legs-syndrome/basics/definition/con-20031101
Timerdude when my meds caused my liver to have a fourth of liver damage,<br>my sister in law gave me an Atkins diet book. I read an put myself on<br>the diet. I started on the first level. I was really dedicated to<br>it because of what I had studied. When I went back to the Dr. and had<br>the live test again it had healed it self. He asked what I had done<br>differently and I showed him what I was eating and how I cut all<br>sugar out of my diet. I've never been a consumer of liquor. He told<br>me to live on this diet as if I were a diabetic. I've been on it for 12<br>years. I do have cheat day's!!. If you have ever had gout you can't do<br>the diet. A lot of people stop the diet because they say it makes them<br>feel bad. They feel bad because the body detoxifies.<br>