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Mildly Hypocellular bone marrow (40% cellularity) with MGUS

Blood Cancers & Disorders | Last Active: Aug 19, 2023 | Replies (7)
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@hpatel334

@loribmt Thank you for your message! I appreciate this. To answer your question, my hematologist wants to be more aggressive, and I am having to do 3-month tests for the next year. Once these show a stable trend, she will shift me to a 6 month or 1 year period. Because the M protein spike went from 0.3 to 0.6 within 1.5 years of my diagnosis, she recommended this. I wish I was on 6 month or 1 year period especially now that the bmbx results show no major signs or concerns.

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Replies to "@loribmt Thank you for your message! I appreciate this. To answer your question, my hematologist wants..."
Lori, Volunteer Mentor | @loribmt | Aug 18, 2023

@hpatel334. From the information you provided, the scans and the bmbx results appeared encouraging, so that will help your hematologist in decision making in the future. It’s also encouraging that you have a doctor who is going the extra mile in having you get bloodwork done every 3 months for that first year. It is important for establishing a baseline and then tracking those all important trends. I have graphs and flow charts for everything, so I can relate! 😅 Four years ago I had a very aggressive form of leukemia which required a bone marrow transplant…giving me a completely new immune system…happy marrow! I’m in a durable remission and feel as though nothing ever happened, super healthy and active. So I know my way around blood work and bone marrow biopsies. And also, that these things can be overcome. That’s why I do my best to instill a sense of calmness with a new diagnosis. It may change our life but doesn’t have to define us. ☺️
I see you have an appointment with your hematologist in a month so don’t stop back with questions or comments, ok?

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Patty, Volunteer Mentor | @pmm | Aug 19, 2023

Greetings! Welcome to the group. You have received a lot of good information and I have little to offer short of encouraging you to use your patient portal to ask any questions you may have that were not addressed by your physician.
At 24 you have oh so many fun things to occupy yourself with and I hate that you have worry hanging around.
Physicians are busy humans, but they will answer your questions. Don’t force yourself to sit with anxiety for nearly a month. Anxiety can be brutal.
Glad you found us!
Patty

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