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Interstitial pulmonary fibrosis

Lung Health | Last Active: Nov 12, 2023 | Replies (48)

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@maryecox

How are his lung function tests (PFTs)? Hopefully he is seeing his pulmonologist every 3-4 months and taking the PFTs ar every visit. Mine have been normal for more than a year; if they are still normal next month at my appointment, I believe my doctor will completely wean me off of Cellcept. I feel like I dodged a bullet, but I do think we caught my ILD early (in August 2020). Good luck and God speed.

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Replies to "How are his lung function tests (PFTs)? Hopefully he is seeing his pulmonologist every 3-4 months..."

Hi there,
He has only been on the Ofev for about 4-5 months, and has had only 1 pft test, which she said was good. Probably next one at 6 months.
Did not ask if any change…
Seeing her every 3 months, and have had 2 good liver function tests, one due now. If good, then we switch to every 3 months. Will see her next month, I think.
Newbies at this, but all have said we caught it early. Cross your fingers that he doesn’t get anything else to drop him down.
I am sooooo happy that you are doing well and will be weaning off the Cellcept soon. Did you have a transplant? I looked it up after one of your earlier posts and found that it is an antirejection Med. If I remember correctly. Or did they just give you that as the basic treatment? My husband is still very active, dog walking and golfing, just seems a little more tired sometimes. Not sure if just southern summer heat, age or illness.
If he could stay at this level, or close, piece of cake.
We are also seeing a functional medicine practice, blood work, etc, and just found some interesting toxicity in his body that we are going to talk about the ways to detox his system. Weird stuff, but when we looked it up, can really affect lungs. Antimony. Lead. Arsenic. Never heard of it…I guess more to cone! Now is he willing to do the treatments to remove…
I wish you so well and let me know what you had done, etc…
❤️