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I have smoldering Myeloma. Does anyone have this diagnosis?

Blood Cancers & Disorders | Last Active: Jun 9 9:26am | Replies (108)
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@treinbold

Is SMM considered stage 1 MM?
Has anyone’s doctor tell them SMM is cancer

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Replies to "Is SMM considered stage 1 MM? Has anyone’s doctor tell them SMM is cancer"
Ginger, Volunteer Mentor | @gingerw | Aug 17, 2023

@treinbold Welcome to Mayo Clinic Connect!

I am attaching several articles here that speak to your concern. While smoldering multiple myeloma can advance into multiple myeloma, it is not generally considered a cancer.

From MD Anderson: https://www.mdanderson.org/cancerwise/6-facts-about-smoldering-myeloma.h00-159538956.html
From Memorial Sloan Kettering Cancer Center: https://www.mskcc.org/cancer-care/types/multiple-myeloma/other-plasma-cell-diseases/smoldering-multiple-myeloma
And from the Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/23911-smoldering-multiple-myeloma#:~:text=What%20is%20smoldering%20multiple%20myeloma,system%20mutate%20into%20abnormal%20cells.

Have you been diagnosed with smoldering multiple myeloma? Many of us are diagnosed first with MGUS during a routine labwork for another condition. If so, what is your medical team advising you at this time?
Ginger

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